Recurrent endometrial cancer to spleen and beyond...

Hello Salis,

and thank you for sharing your situation. Your words have helped.

RD

Hi tvman,

I too love my garden. It has kept me going over the years and I'm taking great delight in seeing the spring bulbs come through. To be honest, at one point my doctors didn't think much of my chances and it crossed my mind whether I'd ever see my family again, let alone my garden, but now I'm walking round it every day. I will look at the gardening thread. 

Most of my research has been from medical journals but due to the rarity of this type of recurrence not many cases have reached the public domain. I think more will as scanning techniques become better and more widely adopted. I've found only 17 in the whole medical literature so far, the latest being one woman in Pakistan who was the only one in her country so far discovered. (published 2020).

My oncologist therefore can only guess what my 'sell-by' date might be - it seems he doesn't have that much to go on really. However, as is the case with the supermarket dates, the 'use-by' date can be well beyond the sell by !!

Thanks,

RD

Thankyou Anndanv,

Your case is indeed an example of hope. It has given me pause for thought.

RD

Hi Tinlay,

Thanks for your response and for sharing your situation.

I wish you all the very best for your latest treatment and hope it works well for you.

You strike me as brave and tenacious.

I know what you mean about getting your 'spark' back and the absolute peace of precious time away from any medical interventions.

Good luck to you.

RD

Hey RD

Very happy to see your positivity.

Isn't it odd how such a little thing like a good brekkie seems so immensely satisfying??? I think that's all part of the journey, at least it has been for me - taking much pleasure in life's small but precious gifts.

Which is why I personally have chosen to try/do everything possible - it's not for everyone, I get that but as you can see from all the different people on here, a little time can bring great perspective and that will help with your preferred direction.

Hi rainieday. Sounds as if you are in the same boat as me...I have advanced endometrial cancer spread to my liver and lung. I was also told I was far too weak for any treatment following a bowel obstruction as my tumour is all over my abdomen now and what it doesn't construct the adhesions from the hysterectomy picks up. I have been told I can no further surgery under ga, only local and they can't fit a stoma properly as I have no bowel they can pull out to make it..it's all covered with whatever, mainly cancer! You are brave finding out your well by date. I don't wish to know but have been issued with that fast track form for esa benefits! I am on a trial and am halfway through the chemotherapy now, lost all my hair and have had a few side effects and problems on the way which has resulted in hospital stays but I'm keeping positive or trying too...I do get My pity party moments but thoughts of seeing my grandchildren and being able to hug them when this is all over keeps me going. That along with custard cream biscuits which i seem to have developed a huge addiction too..I'll get stuck in my ditch one day! You take care now and I hope whatever treatment you decide on gives you some relief and good results. God bless. Lamb

God bless both of you. Xx

I have cancerous nodules in my stomach found after my hysterectomy.  Been told they’re definitely going to grow and kill me.  Prognosis around a year.  Oncologist says I’m borderline for chemo and advised against having it at the moment.  Due another CT scan in May then doing chemo again will be reviewed.  Quality of life is more important to me than quantity of life. Had FEC-T chemo in 2020 that may have affected me being able to have chemo again.  There’s no other treatment available for me oncologist said.

Hello Little Lamb,

It would seem we are on a similar journey together. My oncology nurse told me that the trouble with recurrent endometrial cancer was that it was impossible to tell where it would fetch up next. My spleen was the first port of call plus lymph nodes. In your case liver and lung and your abdomen. The favoured parts it went for, so I read, tended to be breast and lung but the b*gg*r could go anywhere, and, judging by our collective experiences, it does!

I'm not at all brave, Little Lamb, but I do have an insatiable curiosity and a need to understand what is happening inside me. However, it's true that my doctors can only give best guesses and time frames based upon the other cases they know about, and even those are averages. In one respect, it might make life easier if it were more definate - but then the little kernal of hope would be pretty much extinguished.

I find that keeping my mind occupied at the moment stops me thinking too much beyond today but, like you, I do crumple from time to time. I find this usually happens in the shower when I can have a blub to myself. It passes quite quickly - not because I feel less upset but because it wastes such a lot of energy and I can't be doing with that.

I've never been a fan of custard creams, but I'm glad they do something for you. My big thing is Total Greek yoghourt with Greek honey. That does it for me. The very best of luck, my fellow traveller.

All good wishes to you.

RD

Hello WishingWell.46.

Its a bugger and no mistake. I am going to say what just about everyone on here has said andcI hope will say. The longer you stay alive the more time for a new treatment, trial, all sorts of hopeful things could be just around the corner.

You hang on in there, plenty of support on here.