Hello
Quick history. Diagnosis Oct 2023, chemo, Ivor op Feb 2024 chemo, Aug 2024, Hernia at op sight, operation sorted to this day..Spread noted to Adrenal gland, gland removed Dec 2024. Ct scans every 3 months, 1st two NED. 3rd spread to lymph nodes, Para-aorta.
I have no symptoms other than the usual nerve pain or ache, no weight loss.
I was told by the consultant in the UGI team on the 5th December that they could do no more, very kind, respectful, motivational support. I was being referred back to oncology, urgent I was told, He couldn’t answer what the next steps would be.
My question
How long did people wait before they were seen
what tests if any
Any one else had secondary’s at the adrenal or lymph nodes of the para aorta
Any links for research sites
Thanks in advance
Jennie 
