Oesophageal Stent has slipped into stomach, now blocked because the end is up against wall of stomach.

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Another rollercoaster week at the OC funfair. I have been in creasing pain and Dysphagia in the last 2wks and the consultant Oncologist decided " we need to do a Gastroscopy to see what's going on, as well as a CT.After the awfulness last time of Stent placement I would only agree to Gastroscopy as long as it was done under General Anaesthetic.This means the hospital have been trying to slip me into the Emergency list.But after attempting this 3 days in a row each time I got " bumped" quite rightly for an emergency. So now I'm waiting to hear when. The poa is to fish out the old stent and put a new one in.

My main problem atm is Pain, it's really painful and I'm trying to balance Oramorph and Paracetamol as neither seems to work for longer than 3-4 hours.Ive been referred to the community palliative care team but they can't start till they've met with me and because I'm awaiting this procedure I can't really book apts.Anyone any ideas has anyone tried adding ibuprofen into the pain management mix?

ellie 73 26 days ago

I am really sorry, you are going threw this.

My Husband had the same cancer as you., was also on Oramorph, though was not enough for him, and was put on slow relief patches along with Paracetamol.

I hope you get some relief soon. x

anndanv 26 days ago

Hi, As Ellie has said I’m so sorry you are having to go through this too. I hope you will get a spot for surgery quickly.

Regarding adding anything to Oramorph and paracetamol, personally I wouldn’t add anything without getting the OK from my GP, surgery pharmacist or Oncologist as some things can make it worse. They could maybe prescribe a quick release morphine tablet temporarily until your date comes through. Definitely speak to a professional before doing anything, I think it would be quicker in the long run. Good luck, please keep us posted!

Love Annette x

Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!

Puddock 26 days ago in reply to anndanv

Hi Pepperpot

I can't add anything useful, or any suggestions, but I just wanted to give you a virtual ((hug)) and say 'hang in there!'

I hope you'll feel a lot better once the procedure is done.

Thinking of you and sending love

xxx Kate

Pepperpot 26 days ago

I hope this helps someone else but last night I took 2 Ibuprofen with the Oramorph and clasped a hot water bottle to my stomach which sent me off to sleep from 21:00 till 03:00 pain free.I know it sounds ridiculous in a heatwave but it was sublime.

Pepperpot 21 days ago

18/8/25 update.Endoscooy under GA ( vastly less traumatic and will request this from now on) consultant unable to remove old stent due to tumour overgrowth ( NOT good news tumour has grown alot in 10 wks) Therefore has removed as much tumour as possible with a snare.Poa is I come back in 2 wks so they can have another go as well as order a 23cm stent.On the + side, this consultant, talked to me, drew great pictures and for the first time I felt really heard.So I'm going to switch hospitals and team if possible.Its a bigger hospital same distance from home, more non locum consultants ( it's where I used to work) and holistically I think it will be better for me.

The only bad news is that the main tumour has grown so fast and so much, BUT the liver secondary is now just a ' blush'.SO who knows.With all the side effects of CAPOX tumours haven't really had any Chemo in last 3 cycles..these are questions for another day.