After a few sleepless nights I decided to broach the lack of rapport with my Locum Oncologist with the Clinical Nurse Specialists.Very useful lots of offers of support and upshot is one of them will come to every apt from now on.Locum is " the only game in town" for upper GI at Salisbury, the alternative would be to see someone at Southampton.Thats too far away for me every 3 wks.
But the reason I post is that my swallowing difficulties have returned over the last 2 wks following 2 days when I felt better than I had in weeks, I could eat anything and felt I'd really turned a corner.Now I can just manage liquids and purees again.
So...I've lost hope again.The blood tumour markers have dropped significantly again though as the Oncologist reminds me ( constantly) this doesn't mean tumour(s) have shrunk.
Poa is now a CT Scan and an Endoscopy to see where stent is and if tumour is once again occluding esophagus.The last one was so traumatic I've said they will have to do it under GA or stronger sedation.
Chemotherapy has been halted though Herceptin is to continue which is a positive.But I'm feeling pretty low I'm afraid.After 2 cycles of CAPOX I haven't managed to complete the doses of Capcetabin once I become too ill.
I'd be so interested if there's anyone else out there who has Stage4 inoperable Esophageal Ca who's been in a similar situation.
I've also asked for analgesia because I'm in constant pain and Paracetamol 1g every 4 hrs only covers me for 2hrs.Life is feeling pretty difficult
