At last feeling more myself, my apologies for depressing last post about death to anyone who was affected.

I don't know if it is, Liz. My wife was given it when she had her chemotherapy and radiotherapy recently and of course I've had mine for over 9 years. Hope it's not too dear because the injections I have 3 times a week are fairly pricey, as are the iron chelation tablets I have for iron removal from my body because I have the Celtic Curse, haemachromatosis. My pharmacy won't supply them because of the cost, the hospital does, along with the injections.

Tvman x

Aha interesting to learn from your experience.The Celtic curse is a phrase I've never heard before.Injections 3x a week must be difficult but...if they work.. 

Liz

It really is like a  new lease of life taking some of these drugs . I have been ill from immunotherapy for months and they stopped the treatment because it wasn't working . I use to walk everyday usually 3, 5 or 8 miles a day but this treatment has screwed me up and left me a semi coach potato until a few weeks ago. I started these steroids and was on 4 mg a day a week on and then a week off and then another week on 4mg . The hospice nurse recommended I drop to 2 mg a day which I am just finishing a week of. I  noticed a serious difference with wanting to sleep much more now which isn't good , All the Best Minmax

Hi Minmax, I think it's all about quality of life for those on this forum and to me if you are enjoying life albeit with needing to sleep more then it's a good quality.I hope you continue to feel the benefits.Have a lovely day.x

Liz

Hi Pepperpot You are spot on about the quality of life being a key part . Just the joy of sleeping through the night , not having to take pain killers every few hours , I think I am just comparing weeks of different tablets and seeing the low dose effects this week and coming to terms with them . It's all good because I can at least function Thank God . All the Best Minmax 

Great stuff Minmax enjoy the small things today and rest too.x

Hi Liz (Pepperpot), haemochromatosis aka the Celtic Curse, aka iron overload is a rare disease as is my cancer, MDS (myelodysplasia). Haemochromatosis is generally found more in Northern Europe and is hereditary. Both my parents must have had it but it wasn't identified until the late mid to late twentieth century. If only one parent has it then I could be a carrier but would never develop the disease. If both parents have it then there's a 1 in 4 chance of developing the disease. 

The injections aren't too bad, I self administer them, but I wouldn't be here chatting to you if I didn't have them! Needs must. 

Tvman x

Hi Tvman 

How interesting about the history.Im always fascinated by medical stuff...it's having been a nurse you never lose the " interest" mind you my last role before I retired was as an Anaesthetics practitioner ( ODP) in theatres.I loved it the combination of f2f with patients and the combinations of drugs etc.

I reflect often these days how full we all are of knowledge and life experience on this forum.

Lizx