Metastasis to bones

Make sure you speak to your dentist before going on Denosumab, get any dental work done first. I was not aware that I should have had an implant removed before starting treatment,  this caused an infection under the implant and in my jaw.  

Hope all goes well for you.   Cindy  x

Hi Nadine

Hello! I don't know if we've chatted before in this forum, or if this is your first post. Hope you find it useful and supportive! It's a lovely group of people, who will 'be there' for you, whatever you need.

Have you posted your question in the breast cancer forum as well? You may get more replies to your question there. In this forum, we all have different cancers, so there may not be that many taking the same treatment drugs as you.

You can use this website to find more information about your drugs and their side effects. If you look in the Cancer Info and Support box, you should be able to navigate to the drug treatment info there.

I hope all goes smoothly for you, and the treatment is successful!

xxx Kate

Hi Nadine  I have metastatic breast cancer with mets in most of my bones including spine.  My back is the thing that hurts the most.  I take tramadol for the pain with cyclizine for the  nausea.  I also have morphine when pain gets worse.  I am on Ribociclib, Exemastane and Denosumab injections.  I am nearly finished my sixth cycle.  I found that I have tolerated them quite well.  I did get a horrendous rash at first and they talked about reducing the Ribociclib from 600mg to less.  I persevered and now the rash has gone.  I get tired too.  I have neuropath in my feet but think this is from my cancer treatment 12 years ago with chemo, radio etc.  I think that what helps me most is to try and keep to a normal routine and walking.  I walk my dogs every day for one and a half to two hours.  So I feel quite lucky and so far so good.  I really hope you tolerate them too.  If not there are certainly other options available.  Please let me know how you get on.

Lee x

Hi. I have secondary breast cancer in my bones. In my back and pelvis. I have Ribociclib letrozole and zoladex injections and denosumab injections. At first I felt pretty rough. I am now 4 cycles in of Ribociclibm I get some nausea, but antisickness tablets help. Letrozole been on since January. I get hot flushes, mostly at night. Denosumab i couldn't hacs until seen dentist, and I had to have a tooth out. I have had 2 doses of denosumab, I dont think I have had any side effects 

Hi Nadine

it is a scary few months as you process what has happened to you and all of that along with the treatment will mean you need more rest so be kind to yourself and take the time to readjust. I am on similar meds for similar cancer and mets. I was tired and had a lot of stomach problems and they had to reduce my dose when my neutrophils wouldn't stabilise. If you are having menopause symptoms then expect them to get worse. I also had a lot of pain but that was happening anyway due to the bone mets and also radiotherapy. What they are prescribing you are well tried and tested treatments and I hope you will update soon to say it is going well.

bug hugs  xx Thea