Phase I trials

I was on a phase 1/2 trial from June 23 - June 24.  

I had my drugs in a separate room adjacent to the "usual" day unit and it was a different ambience.  The day unit was packed, noisy, lots of waiting and regular emergencies.   The trials unit had only 7 chairs, there was hardly anyone there, no waits and it felt like a private appointment.  I never saw an emergency when I was there, but lots of consultants came in and lots of talking with their patients.  But the setup was the same as a day unit with chairs, curtains, normal day centre furniture, the tea and lunch trollies with cheery volunteers. At the start of my treatment in Jan 2022 I craved a cancer buddy, but it just didn't happen due to cycles not synching.  As time went on, I craved a buddy less and less.  I got used to my situation. 

I got to know the staff better in the trial area as there was only 4 of them.  It was more relaxed.  

I'm not really understanding the environment you describe.  It does sound different.

I was fortunate with my trial.  I tolerated it fine, my results showed a trend the trial was anticipating, and it had the desired effect to manage the cancer.  Just a few niggly side effects but they didn't feel like it at the time!

Edit:  it was the Scancell Modi-1 (ModiFY) trial.  If you google it you should find the scope on the Scancell web site.  But I  add this note to say it describes itself as "Modi-1 is the first candidate in Scancell’s Moditope® platform. The ModiFY study is a multicentre Phase 1 open label first-in-human clinical trial with Modi-1, an innovative cancer vaccine targeting citrullination in cancer, being administered alone or in combination with CPIs".   

Hi clg03 and welcome! I was meant to be on a Phase 1 Trial for a Combo of 2 drugs however I failed the screening and like your friend could only take one of the drugs. The guideline for the drug was exactly the same as you describe and I used to set my alarm for the 12 hours apart when I took the drug and also when I had to stop eating and drinking before and after it. As a result of not being on the actual Trial, I didn’t go to the Trial Suite like the others, I got the drug once a month from my oncologist having had blood tests three days before. I was seen in between clinics, so usually there was no one else there to chat to.

As long as I was getting the drug I needed, I wasn’t too bothered. Then I joined this Forum and found there were others in a similar position. By joining here, you will never be alone, there is always someone to talk to and to tell them how you feel, so you have come to the right place. I am a Night Owl but I’m sure others will reply once morning arrives. There is also a November Chit Chat Postyou could join in with, in the meantime! I hope your trial works as well as mine did!