A version of chop chemo

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I have posted before about my lymphoma cancer so won’t repeat other than to say the prognosis is not good . 
I am currently having chemo it’s a version of the r chop treatment with a few tweaks . I have completed 5 cycles if 6 of what I can only describe as gruelling side effects the loss of my hair was the one that had caused me the most angst . ( I feel vain as I write this) anyway I was wondering if anyone here was or is on similar chemo and felt it’s not worth continuing. My family are supportive but want me to finish the treatment thoughts that crowd into my head are .., if I feel so ill with the chemo would I be better not finishing and making the most of my time left hopefully feeling ok for a while , I know there is no right answer but it has helped to share. 
Thankyou

  • Hi i am sorry i cannot say, what i might do, if in the same situation.

    Though getting it out in the open, to people here, that might fill the same, or in the same situation.

    WE are all on this Roller Coaster, that's what i call it, and yes family want the best for you.

    I always say, my family  support me and have done all the way threw, but know one truly understands, how the treatment can make you fill, my family only see the out side of me, and i make look like S..t but deep down, it is a lot worse.

    We all have good days, and then along come the bad, it is hard, but we have to come threw it, until and only you say, thats enough.

    I have told my children, when i say i cannot do this any more, they  must respects my wished, and they said Mum its your descion, do not carry on for us, you have to do it for yourself, until that time comes.

  • Thankyou for your reply I have read about your journey so far it is inspirational thankyou . My children and husband also agree it’s up to me I just need to tell myself it’s ok 

  • Thank You, though i am no different from a lot of others.

    Though has been hard,

    Tomorrow is another day, and you may think differently, we all have  down days, me included, and as we say, Big Girl Knickers have to be put on, i bought some new ones the other week.

    As others where worn out, amount of times, i have had to pull them up, sorry i like to see funny side of things at times.

    Please have a little moan when ever you wish, would never have got this fr, with out this group, they have held me up, when i needed it.

    I do often think what would my hubby say, though deep down i know what his  answer would be, and that keeps me going.

    Do not be a stranger, always some one here, even if only to listen.

  • Hi  

    I'm sorry to read that you are having a hard time on this type of chemo. I didn't have this type but I had 6 cycles of Carboplatin/Paclitaxel. I have read your profile. 

    I would say - is the chemo making any difference to the problems you've got from cancer? Have you discussed with your oncologist?

    Only you know how you feel and whether you think the chemo is working. The other way to look at it is that if you complete the last one, you will know that you have given it your best shot. Plus, you have been strong enough to get this far, there is only one left. I am not trying to persuade you, I understand how hard it is and that with each cycle, the body gets more tired and weak.

    If you would like to talk it through with someone, think about the Macmillan helpline. They are very helpful and understanding and may be able to help you with your decision. This is the link to contact 

    https://www.macmillan.org.uk/about-us/contact-us

    Best wishes for your results and your decision.

    A x

  • Hi Hilo I have done radio therapy once  and chemo twice , with a neck dissection throw in . My daughter did say to my ex partner what happens if we go up and he is dead , So what I am saying is I must have been in a bad way , I did get admitted to hospital as my white blood count were  so low and I could only do 4 cisplatin as opposed to 6 and I did feel terrible at the time. There is nothing worse than feeling terrible and all you have to look forward to is more of the same. I think you have done so well like running a marathon but only you can finish it and you have the finish line in sight. I know you say the prognosis isn't good but why throw away a chance and worse case you can say you gave it your best. I hope this helps you in some way as I maybe repeating exactly what you have said . All the Best minmax  

  • Hi Hilo I know you mentioned the prognosis not being good but just got off the phone to my son . He pointed out to me that the chances of the chemo working were 30 % . This was a conversation I had in January before I started chemo and had since totally forgotten about it. Sometimes with everything going on we can get focused on other things All the Best minmax