I’m feeling anxious tonight after seeing my oncologist today. I’m due my 5th IV infusion of Pembro tomorrow which is going ahead. However my scan results show there looks to have been some progression. She thinks it’s complicated and is still possibly indicating pseudo progressio. I’m not I’ll - in fact feeling a little better than when treatment began. Certainly not in great pain- just occasional abdominal discomfort usually related to after food or when constipated. (My cancer is around peritoneal lining; spread from womb originally and is Serous type)
I just don’t know what to think. Her advice is to keep going and scan again in 6 weeks. If by then there is further progression, we’ll review and possibly start Chemo (which was quickly effective last time, but recurred after 5 months)
You might ask why I’m worried then. I’m sitting here thinking - is it worth it? Is it really going to make a difference? I’m just so mixed up about it all.
anyone else experiencing this anxious confusion?
plus we had hoped to fly off to Tenerife for some sunshine. My oncologist says “I’m not overly enthusiastic about you going” but won’t say don’t go. Now I’m thinking - will I ever go abroad again? I don’t want to be fearful. I want to enjoy the little time I have. But these things are clouding my life right now.
On a positive note - I start my counselling tomorrow! After a 5-month wait. Turns out the nurses hadn’t done the referral correctly. Psychology had never received it! How can that happen? Anyway, the psychology team were stats when they I complained and within a day they offered me an appointment within the week. Something good is finally happening:)).
Hi Ochno
My cancer has never made itself felt in any way at all. The original breast tumour was deep in my somewhat large breast, I couldn’t feel it, none of the doctors could feel it. Without a routine mammogram it would have been some time before I knew.
My liver mets have not caused ascites, or jaundice, or any pain. If I hadn’t had a CT scan it would have been some time before I knew.
Treatments have however been felt, but I still think it’s been worth it despite all the misfortune I have had from treatment.
Hope your upcoming treatment is effective and bearable.
Just finished my first cycle of Gemcarbo, 2 weeks on then a week recovery. All going fine. As thought I’m mTNBC, still await PD L to see if immunotherapy might be added. Only problem I’m having is veins not cooperating very well. Portacath awaiting authorisation. I shall persevere. Seems approval can take a month. Onco and chemo team chasing. Tolerating chemo well, though liver ALT have jumped. Hopefully the weeks rest might see them sort themselves out..
It's really good news that you have tolerated the first cycle of chemo!
My veins don't co-operate well nowadays either, I think they get wise to all the needle attention and try to wriggle out of the way! Pesky things...
Hope you continue to feel OK, that's the most important thing.
Stay strong
Kate
Thank you! I’m like a blinking pin cushion, all black and blue. They had to keep turning flow rate down so the infusion took ages. It literally was a bleeping long day. Head chemo nurse said it can’t continue like that so hopefully she’s rattling a few cages! she told me moisturise moisturise and massage gently to keep circulation going.
All good so far, nothing too major. Keeping on, keeping on x
Hi Ochno
At my treatment clinic, they put heated (microwaved) pads on your hand for 15 mins first, to widen the veins, and kept the heated pad on over the cannula during the treatment, to keep the vein warm. Don't know if they do that in your treatment place?
Hopefully you'll get a portocath fitted, and that will make it much easier, before your next treatment.
Good luck!
Kate
Hi there, I haven’t seen them do that with anyone yet. I just get a slapping about. It always feels as if the infusion comes directly from the fridge it’s so cold brrr
next cycle begins on the 19th. Maybe? Though doubt it?
having an afternoon of stomach cramps, oh the joys x
Hi Ochno, Sorry you are having problems with your veins hiding, that's what mine do too! I have been advised to keep me hands and arms warm right up until they take blood and drink plenty of water and then drink some more water!
Why not ask about the heat pads, or buy some! If you don't ask, you don't get!
Love Annette x
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