Hi everyone had an appointment with my oncologist yesterday that brought more bad news.
Had an abcess removed from my vulva and a biopsy of the skin around showed its recurrent squamous vulva cancer.
The cancer is resistant to the chemo carboplatin and I now have secondary bone cancer with a tumour on left hip that's at risk of fracture. Awaiting hip pinning asap. Need an MRI before which I'm petrified about. Have got sedatives to take so hopefully be ok.
After hip pinning am being given cisplatin chemo and another one fluorouracil the latter via an infusion pump that's delivered slowly over two days so come home with it. Having denosumab to haelp bones. Radiotherapy can then be done to that area.
Feeling shocked didn't get much sleep last night but just got to soldier on no choice.
Take care
Sue
Hi suze99
Very sorry to read this but I'm glad that there is a plan for you. My left hip fractured due to endometrial cancer. I didn't know it at the time, just thought the pain was becoming worse. The oncologist saw it on CT about 6 months on from end of treatment. Mine is healing due to RT treatment. My endometrial cancer also has a squamous cell element. Dr Google says that's rare but not sure if he's right.
How are you doing walking. I found it very difficult and draining. I remember getting upset trying to make the bed, it was so frustrating. I got a walking stick from Amazon in the end as the limping was doing my back in.
Keep going Sue, there's more that can be done treatment wise. Hope the MRI and hip pinning goes ok.
A x
Thank you so much for your kind reply. Got crutches from physio at the moment as they want me to avoid weight bearing on the left hip due to risk of fracture. Got MRI booked for tomorrow. Hopefully get pinning done next week.
Sue x
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