2nd line

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Background -
*diagnosed in oct 22 with Leimyosarcoma to the uterus stage 4 with mets in lungs and lesions in my liver.
*Oct - feb 23 - x6 rounds of doxorubicin - lungs mets reduced dramatically, womb stable and liver stable.
* March 23 - full hysterectomy and histology showed womb only had cancer - it hadn’t spread to ovaries or tubes etc
* MRI in May sadly showed mets to spine and I received some radiotherapy
* CT scan 2 weeks ago.

So saw my oncologist on Wednesday and the CT shows that the mets to my lungs have grown again and some more! Liver is still stable and obviously have this new issue of mets in my spine in 6 areas. He has suggested Gemcitabine and Docetaxel and Denosumab for bones. He

Have others had this combination? 

How is Denosumab? 

I know we are all different but just some feedback and how things are going would be a great help. Can’t seem to find anything much on Dr Google! 

  • Hi  

    I'm sorry to read that you need more chemo. I've not had that combination but I just wanted to suggest a couple of things for you. You could try the search button at the top of the page, the spyglass on the green panel. If you wanted to speak to someone the helpline is open, this is the link to contact https://www.macmillan.org.uk/about-us/contact-us

    Hope this helps,

    A x

    What is a Community Champion?

    I am a Macmillan volunteer. 

    Macmillan Support Helpline

    0808 808 00 00 

    7 days a week between 8am -8pm

  • Hi Boo12, I'm so sorry to hear what has happened. I've not had any experience of chemo or the drugs you mention. What I have experienced is Living with Incurable cancer as the name of the Group suggests. I was told in 2013 in May, I had 5-7 months to live and I'd be lucky if I saw Jan 2014. Yet here I still am. It has been a bumpy roller coaster ride at times but I went on a Trial Drug that was unlicensed and now it is widely used.

    If your oncologist has suggested these drugs, then there is a good chance of them working for you. The cancer drugs are very expensive and they don't hand them out without thinking they may work. Where there's life there's hope. Never give up! Good luck!

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!