lol! I am feeling some relief but I'm up to 10mg slow-release morphine and 2 5ml spoonfuls every 4 hours. I am taking proper breaths now and I think I can cope with this finally, if this stays like this! I do have my 24hour Beaston emergency oncology numer but I was there yesterday, seeing a doctor, so I think all they could say would be the same as her. I do have morphine here but it's just not knowing what I can reasonably take, which prompted my original question. Had just wanted to get an idea of what other people take...
Thanks, Kisi gal, for cheering me up
Hi Chillamum.
I came online today for the first time in ages looking for support with exhaustion and found this. I wish I had been on when you first posted as I am further along the road of morphine than yourself. I hope by now you are pain free.
I have a pain consultant in my palliative care team who has been fabulous in helping me understand pain and the drugs that I use to eradicate it, I've been on Morphine since November 2020. When I presented, before my diagnosis, I was in agony and came away from that first appointment with instant release Oramorph, taking 2.5ml doses to begin with. Over the course of a couple of weeks I got to the level where the pain stopped and we transferred my meds to slow release (MST) and it continued that way for a few months. WHen breakthrough started again I started taking the top up doses of 2.5ml 4 hourly, then 5ml 4hourly. eventually we increased the MST to a higher level again so I didn't need the breakthrough doses. Alongside the Morphine I also take paracetamol and Amitriptyline.
As I say, I am mostly pain free.
The latest increase in March brought me to the "CEILING DOSE", that is 120mg of MST and 30mg of Amitriptyline. I have been told that if I get breakthrough in time I can use the Oramorph but will need to see the pain consultant again when the pain gets unmanageable. Obviously do not read this thinking you can do the same. I was acting under my pain consultants advice. What I want you to be assured of is that you do not need to be in pain, there are plenty of medications available to ensure you are pain free.
I truly hope you are in a better place by now but it is definitely worth asking if there is a pain consultant in your area who may be able to help you.
Good luck with everything
Thanks for posting. This is good to know and reassuring. Hope we all find our way to this sort of support. Rainie x
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