Advice welcome

Barb, If it were me I would press my oncologist about alternative treatments. What have you got to lose by asking?

Have you read that the Cancer Drugs Fund have just approved Dostarlimab for women with endometrial cancer? This was on trial in Cambridge and I was going to press my oncologist to go on it, but then my next 2 scans were clear, so I wouldn't have been accepted in any event.

But now it's been approved after very good results. It's pertinent if your tumour isn't one that is dmmR [mis-match repair deficiency] or MS1-H [micro-satellite instability-high]. 25% of women with our cancer have these markers. If you have them you will not be eligible. You need to find out from your oncologist what sort of tumour you have. You could then consider lobbying him to get on this treatment if you have the right type of histology. You've tolerated chemo and I don't see why you couldn't be offered something else afterwards, providing you feel strong enough. If dostarlimab isn't appropriate then maybe something else can be tried?

I will be asking my oncologist about this myself.

So my approach would be to phone, phone, phone. Press, press, press.

Don't wait. Tell your oncologist you want to remain with him and find out what other options there might be that are open to you. Ask him about the possibilities of trying an immunotherapeutic agent like dostarlimab. If it's not suitable, you've lost nothing by asking and showing him your determination to carry on.

Write down all the relevant things you want to ask, call your cancer nurse at the hospital and tell them you have things to ask him.

That's my advice Barb. 

All the luck in the world.

Rainie xxx

This:
"He said when I complete my remaining 3 cycles I'll have another CT scan then a short break whilst the next phase of treatment will be worked out. Whether that will be further chemo or tablets is as yet unknown. . . . "

For me, if my Oncologist is suggesting more treatment, then it's not appropriate for a discharge.  Why can't you remain on their books - it's not as if the condition is fixed.   I think having the pathway to oncology open, and the referrals they can request, is totally appropriate.  Having to get a new GP referral for an existing condition sounds bonkers to me?    Also like potential barriers to care/advice/support are being put in place and now is not the time for that approach.   

What's your GP going to do - engage Oncology/Gynae via the GP "urgent suspicion of cancer" route . . . . . . oh wait now . . . . 

I'm worried with you, too!.    Don't go with the flow - your view and experience is the most important thing.  

Sending love xXx

Sorry I hadn't replied sooner, it was a chemo day yesterday 10.30 - 17.30 so didn't come on the forum at all.

Thanks for your replies. I've drafted an e-mail to my Oncologist which I'll send after I have a chat with my CNS on Monday after she's had her MDT's in the morning. In addition I want to talk about the trial announced for Dostarlimub. I've never been told about my tumour markers so that's another reason to press to stay with Oncology.

No way do I want to be discharged to the care of my GP surgery. Since the departure of one GP and the retirement of the other GP who knew me I'd be putting myself at the mercy of God knows who.

Thanks for your support, hugs, Barb xx