Scan delays

I wonder if we have ever been sat in WP at the same time lol

Hi Rainie,

About preferring all the info, back in the day when I studied health psychology, they had identified "monitorers," who become less anxious when they knew more detail about what was going on medically, and "blunters," who did better getting general info and trusting their doctor; more info would make them more anxious. I tend to be a monitorer, however I am so aware of the limits of my knowledge, and honestly just don't feel like following research in my cancer all that closely - I'm a researcher by trade, so that feels a bit like work to me, and I know my doc is excellent and has access to resources I don't (like conferences and personal communications with others in the field, where they get the most most up to date info, before it's published; getting something published can take a year or more), so it's sort of a luxury to leave it to my medical team. I did some double checking when we were deciding to stop treatment, to make sure there are no more trials or treatments that I'd be interested in (ie, that wouldn't make me sick), and my medical team was right again, from what I saw I agree, nothing I want. But I'll probably look into things every couple months, you never know.

PatriciaV

Hi Rainie, my GPS systemonline has the same as you probably. My hospital Addenbrookes is a separate system when they send an electronic letter to the GPs all I can see on the GPs system is that they have made an entry received and a jumble of numbers and letters that obviously mean something to them. One of my sister in laws works in a records department of a hospital in the midlands and they trundle around paper records, I couldn’t understand how that could be so archaic when Addenbrookes has had its system for a few years.

When covid vaccinations were going on I had mine in Feb and April through a trial at Addenbrookes, I could see that my GPS records had the 2 dates on their system and yet I still got sent NHS letters in May asking me to go for a vaccine as records show I hadn’t had one. I suppose they sent the letter to be better safe than sorry. I suppose that’s why the NHS wanted an electronic method to link every NHS site together. 

I am really glad we have the system it’s a shame it’s not more widespread, I wonder if Addenbrookes have it as a trial to see if it saves staff time or wether it creates more work with people asking questions ?! 

Maybe it is being tried out in a few places. There was a listing in London somewhere too. The staff in my hospital wheel round paper files too, though maybe that's just as well. If those ransomware criminals got hold of the system and the paper records had been consigned to history, imagine the chaos? Doesn't bear thinking about.  Rainie x

Very true, doesn’t bear thinking about. 

True about ransomware, but the computer stuff I think is less prone to human error and things getting lost. Plus, it's much more mobile. I became very ill 1000 miles away from home, and my wife was able to pull up my online record to show the doctors at the emergency department and ICU. Super helpful.

PatriciaV