Painful Hands

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I was diagnosed with incurable breast cancer in November last year, almost 11 years after my primary diagnosis. After 2 cycles of the gold standard Chemo during which I was really poorly with seriously low white blood cell counts and struggled to stay hydrated through diarrhea and vomiting, I had a CT scan only to be told the cancer continues to spread. I decided to stop treatment and enjoy life with my family and friends instead. I am on morphine which makes enjoying life possible.  I have tumours in my spine, shoulder, sternum, chest wall tissue and muscles; lesion on my liver and nodule on my lung.

For the last 3 weeks I have been waking in the night with painful hands, they remain like it when I wake and wear off slowly through the morning. Has anyone else experienced similar. I recently had to increase my slow release morphine dosage after taking Oramorph for breakthrough pain regualrly for 2 weeks. Could this be connected to it?

Any suggestions would be gratefully received.

Julie x

  • Hi Julie,

    When did you stop the chemo? I know that chemo can keep kicking your butt long after you stop having it.

    Nothing else to offer, sorry, but I'm sure someone will be along with something more useful to say soon.

    Stuart x 

  • I had panful hands , they kept cramping, I started taking a magnesium supplement and it hasn't happened since, not sure if it went away or the magnesium sorted it and I have no intention of stopping the magnesium and my anti cancer dugs reduces my magnesium levels significantly


    Richard

    be safe, be nice, be you 

  • My hands are painful at night and swollen and it seems to be tied in with kidney function so might be worth a blood test.

  • Ah I hadnt thought about chemo, last treatment back in January. I will ask my oncology team next week

    Thsnks for the pointer Stuart. 

  • Amazing how minerals can affect our body,  I guess a blood test might give me an idea. Thanks for the suggestion Richard 

  • Definitely think some blood tests will be a good idea. I never realised painful hands can be caused by so many different things.

    Thank you everyone for your responses. Maybe I will stop thinking Im a wimp now I know others have experienced similar.

  • Hi, Zest

    Since chemo 2 (now 10 months after it was stopped because it wasn't working) my two smaller toes and fingers on both side go through periods of numbness. It's called perineuropathy, I believe. It's all right when the weather is not cold but when it is, they sort of freeze and go painfully cold and the cold spreads to the rest of my hands and feet. Something which SEEMS to make a difference (in my mind perhaps but who cares) is a vitamin B6 I believe. It's called Pyridoxyne. It was given to me by one of the MANY oncologists I have seen since "all this" started. They all seem to make the same soup slightly differently....

    I'm not sure it's the same thing you're experiencing, but on the off-chance...

    CLG03...