Hi All, New to this forum but have been on the lung cancer forum for a while. I have known pretty much from diagnosis last August that I am incurable but have had chemo and radiotherapy which seem to help and started on immunotherapy in February - 5 treatments on and they have said it is not working, the right adrenal gland has increased from 3.2 to 6 cm but the left gland and lung tumours have stayed about the same size as they were since the last scan.
Request for advice: Is it worth asking the oncologist, as it has not spread any further, to continue with the immunotherapy for a couple more times and scan again to see if this is what they call pseudoprogression? Has anyone had any experience with this at all? I've not had majopr side effects from it and am feeling quite well though a bit more achy than have done.
Anybody's experience would be good to hear.
Thanks
Karen
Thanks Galilee,
I did know it was expensive but it hadn't occured to me that may be the reason they stop it, but I will ask. I also had Cisplatin and radiotherapy started in Oct last year and finished a week before Xmas and that had shrunk the lung tumour but found it had spread to the adrenal glands, they had spotted 'something' on my adrenal glands but they weren't too worried about it before treatment started 
they obviously are now. The next line I was offered was Docetaxel which sounds pretty hard going and I think I was lucky as I didn't have too many side effects with the first round even with the radiotherapy on top. I have also asked about getting another biopsy for ALK and EFGR as they didn't have enough from the biopsy to test last time. I also asked I could try another immunotherapy drug and if it would work but was told no.
Always worth an ask though.
Thank you for your advice 
Karen
