“A SiT’s Progress”

FormerMember
FormerMember
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My apologies for my recent absence from our little community – there are two reasons.

Firstly, I was quite deeply offended at the recent unnecessarily heavy-handed manner in which the powers that be dealt with our “offensive” behaviour – I think they maybe should recognise the specific circumstances that bring us together in this place and cut us a little slack…

Secondly, whilst all of that palava was unfolding, I was also going thru the Scanxiety nightmare of my 9 month test & scans and whilst the CT Thorax/Abdo/Pelvis report was Stable Mable, the CT Brain reported 3 mets which, as many of you know, in late-stage SCLC usually signifies the beginning of the end…

And so it probably is but my Oncs are not letting me go without a proper “tear-up” as the proposed new treatment is RT Brain (planning session next Weds at CUH), followed by a second go on the original chemo of Carboplatin/Etopside (which apparently is effective at crossing the brain/body threshold) and continuing with the Atezolizumab. He even said that there are “other” possible treatments after that…

It is quite interesting in that SCLC is usually not treated with Atezo and coupled with the incredible response since diagnosis, my onc said that all normal bets are off because this is new territory, even for them… We’ll see…

Much Love & Huge Hugs

Stay Strong

SiT

  • Maz, you are forgiven, of course you were lead by the ubiquitous nuisance SiT. 

    Salis, shameless indeed, I am just trying to organise matters, not just for me, for my good friend SiT. I am just never recognised for my philanthropy. 

    I may just look after myself and my biscuit friends.

  • I always got a biscuit for you Slight smile

    But i have to say i'm glad we can keep SiT for a bit longer, would be boring without him. Don't you start on that bike when on RT ...believe me it will not end well....

  • FormerMember
    FormerMember in reply to Pet1968

    Dear Pet - you are too kind even if there is an obvious response but we'll gloss over that and concentrate on the new treatment and hope for the best.

    Thank you and everyone else for all your kind words and fabulous encouragement.

    SiT

    PS - He REALLY REALLY doesn't deserve any biccies - just ask Mrs Norbs!!!

  • FormerMember
    FormerMember in reply to FormerMember

    Yay biccies! Back in the day when Lincoln biccies were known as Manhole Covers! (Well, to me  and my old friend Dave anyway) kind words of encouragement and hope to Mr. SiT for the next steps ahead xx 

  • FormerMember
    FormerMember in reply to FormerMember

    Thx BinBag - enjoy your cookies!

  • Hi,

    I know what it feels like. I was forced to surrender my licence and gave my car to my son.

    my double vision was just too troublesome even with the prism glasses. I took myself off the road. My husband can drive me and we don’t go anywhere now. It still hurts though that loss of independence 

    Ruth 

  • FormerMember
    FormerMember

    Well... 4 WBRT sessions in and, thank goodness, relatively few sides!!!

    A bit tired and a little bit crap in general but way better than I expected... 5 sessions next week so probably know more about sides at the end of that, then the last one the following Monday and 16th infusion on the Thurs.

    The radiologists have been truly magnificent with me, today a young lady remembered me from the RT Thorax last July. They do everything possible to help with my "Girl's Blouse" clausto and whizz me in & out like you wouldn't believe - todays session was about 7 minutes from having the mask tightened down to being released!!!

    Question: I've been told they will give me the mask at the end of treatment - does anyone want to see a photo?

    Love & Hugs

    Stay Strong

    SiT

  • FormerMember
    FormerMember in reply to FormerMember

    That’s great news SImon xx

  • FormerMember
    FormerMember in reply to FormerMember

    Thx M

  • That is great news SiT, it makes all the difference when you have a good team. I was going to ask you if you were going to keep the mask.  I’ve heard divided thoughts about keeping it. Some say yes they kept it, others say no they don’t want that reminder.  To answer your question....yes please 

    Chelle 

    Try to be a rainbow,in somebody else's cloud
    Maya Angelou

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