“A SiT’s Progress”

FormerMember
FormerMember
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My apologies for my recent absence from our little community – there are two reasons.

Firstly, I was quite deeply offended at the recent unnecessarily heavy-handed manner in which the powers that be dealt with our “offensive” behaviour – I think they maybe should recognise the specific circumstances that bring us together in this place and cut us a little slack…

Secondly, whilst all of that palava was unfolding, I was also going thru the Scanxiety nightmare of my 9 month test & scans and whilst the CT Thorax/Abdo/Pelvis report was Stable Mable, the CT Brain reported 3 mets which, as many of you know, in late-stage SCLC usually signifies the beginning of the end…

And so it probably is but my Oncs are not letting me go without a proper “tear-up” as the proposed new treatment is RT Brain (planning session next Weds at CUH), followed by a second go on the original chemo of Carboplatin/Etopside (which apparently is effective at crossing the brain/body threshold) and continuing with the Atezolizumab. He even said that there are “other” possible treatments after that…

It is quite interesting in that SCLC is usually not treated with Atezo and coupled with the incredible response since diagnosis, my onc said that all normal bets are off because this is new territory, even for them… We’ll see…

Much Love & Huge Hugs

Stay Strong

SiT

  • We will send posh get well cards and plasters.

  • I'm on holiday in Whitby with both my mountain bike and my ebike, I hope that you get a good ride our on the b*stard SiT! 

    Sarah 

  • Hi SiT, Inconclusive is better than bad news! I have arranged with the owner of a new Bike Shop in the village to Hire an ebike for a weekend. He is waiting for their delivery, so no date yet. Do you think it is possible to ride on one if you cannot lean on your left leg? I didn't want to buy one until I had tried it first. Family don't think it is a good idea, in case I fall but Carpe Diem!

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!
  • Well Simon, they're not bad scan results, you can relax a little now and enjoy life.

    Take care and stay safe Si

    Tvman

    Love life and family.
  • SiT I’m glad you are feeling ok on these new meds, sorry you have to re scan though. 

    We are all waiting in anticipation for the picture of you on this bike. I think there are some sunny days ahead next week Stuck out tongue winking eye

    Chelle 

    Try to be a rainbow,in somebody else's cloud
    Maya Angelou

    Community Champion badge
  • Have fun on the bike.

    I have been out on my mountain bike twice and loved the feeling riding along the country roads. Problem with wobbling a bit when cars go past so just walking the dog for the time being xx

    Ruth 

  • FormerMember
    FormerMember in reply to ruthjp

    I fought TheBastard and TheBastard won!!!

    Hahaha! Went for a ride, had a coffee & a bacon sarnie then made my way home & promptly fell off 20yrds from home!!! Oh the ignominy of it all!!!

    At least that will bring joy, mirth & GREAT happiness to two of my NOT friends!!!

  • What blinding news, couldn't have happened to a nicer person. I need a new nappy now.

    What bits are damaged, of you and more importantly theBastard?

    Got to say though, up to the amusing bit, I am glad you got out and about.

    ( if you want to laugh, the house we wanted went to final offers. We got it but we are now officially potless. Please set up a go fund me page)

  • Omg SiT I hope you are ok and nothing is bruised apart from your ego. 

    Norbs congratulations on your new house! I’m glad you got the one you wanted, one step closer to a puppy Dog 

    Chelle 

    Try to be a rainbow,in somebody else's cloud
    Maya Angelou

    Community Champion badge
    • We don't want pictures of SiT unless its fully lycrad up with nothing human on view! 
    • House not finished yet, don't think our buyers know that! But garden is small, flat and puppy sized! Xx