“A SiT’s Progress”

FormerMember
FormerMember
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My apologies for my recent absence from our little community – there are two reasons.

Firstly, I was quite deeply offended at the recent unnecessarily heavy-handed manner in which the powers that be dealt with our “offensive” behaviour – I think they maybe should recognise the specific circumstances that bring us together in this place and cut us a little slack…

Secondly, whilst all of that palava was unfolding, I was also going thru the Scanxiety nightmare of my 9 month test & scans and whilst the CT Thorax/Abdo/Pelvis report was Stable Mable, the CT Brain reported 3 mets which, as many of you know, in late-stage SCLC usually signifies the beginning of the end…

And so it probably is but my Oncs are not letting me go without a proper “tear-up” as the proposed new treatment is RT Brain (planning session next Weds at CUH), followed by a second go on the original chemo of Carboplatin/Etopside (which apparently is effective at crossing the brain/body threshold) and continuing with the Atezolizumab. He even said that there are “other” possible treatments after that…

It is quite interesting in that SCLC is usually not treated with Atezo and coupled with the incredible response since diagnosis, my onc said that all normal bets are off because this is new territory, even for them… We’ll see…

Much Love & Huge Hugs

Stay Strong

SiT

  • FormerMember
    FormerMember in reply to FormerMember

    So predictable. But if you would ask I will be grateful.

  • FormerMember
    FormerMember

    2nd jab done! Yayyy!!!

    Just the small matter of 1 year cancerversary scan & first since WBRT tomorrow... Doubt I'll get any results til next week at the earliest as onc on leave... & we wait...

    18th atezo infusion on Thursday - busy week!

  • FormerMember
    FormerMember in reply to FormerMember

    An anxious time but on the bright side you won't be pulling your hair out with worry!

    I am in trouble with La Norbette for saying that,  didn't mean any harm, just sayin.....

    All crossed for you. No kisses or hugs sent, I will leave that to your harem on here.

  • FormerMember
    FormerMember in reply to FormerMember

    Really... The hair thing???

    Last time I checked there was precious little hirsuteness adorning the Norbonce!!! Just sayin'...

  • Yayyy!!!!!!!! Jab done excuse the pun hahaha fingers crossed and jyps paws crossed for you with results and your 18th infusion!!!!!!! you keep going otherwise me and norberry will be getting on to you xxxxxxxxxxxxxxxxxxxx

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  • FormerMember
    FormerMember in reply to Popgate

    Just what I'll need - voices from the other side when I'm ON the other side!!! No peace... Hahaha

    Thx Poppers XX

  • FormerMember
    FormerMember in reply to Popgate

    You are right Popcorn, we will have him on the run! No arguments.

  • POPCORN hey !!!!!!!! Oh the banter being it on hahaha

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  • Hahaha oh yes me and norberry are going to be your constant shadows something to look forward to hey hahaha xxxxxxxxxxxxxxxxxx

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  • FormerMember
    FormerMember in reply to Popgate

    Look forward to??? Holy Roly Poly!!!

    Does the phrase "Hell on earth" resonate?

    I'm off to the CRUK site!!! Or bed...