“A SiT’s Progress”

FormerMember
FormerMember
  • 369 replies
  • 30 subscribers
  • 51775 views

My apologies for my recent absence from our little community – there are two reasons.

Firstly, I was quite deeply offended at the recent unnecessarily heavy-handed manner in which the powers that be dealt with our “offensive” behaviour – I think they maybe should recognise the specific circumstances that bring us together in this place and cut us a little slack…

Secondly, whilst all of that palava was unfolding, I was also going thru the Scanxiety nightmare of my 9 month test & scans and whilst the CT Thorax/Abdo/Pelvis report was Stable Mable, the CT Brain reported 3 mets which, as many of you know, in late-stage SCLC usually signifies the beginning of the end…

And so it probably is but my Oncs are not letting me go without a proper “tear-up” as the proposed new treatment is RT Brain (planning session next Weds at CUH), followed by a second go on the original chemo of Carboplatin/Etopside (which apparently is effective at crossing the brain/body threshold) and continuing with the Atezolizumab. He even said that there are “other” possible treatments after that…

It is quite interesting in that SCLC is usually not treated with Atezo and coupled with the incredible response since diagnosis, my onc said that all normal bets are off because this is new territory, even for them… We’ll see…

Much Love & Huge Hugs

Stay Strong

SiT

  • They must think there's some life in you yet otherwise they wouldn't bother! Dont worry about me not getting it yet, I have nothing to offer the world.

    Where's the Bastardbike pics and why are we allowed to call it that, when useful things are removed.?

  • FormerMember
    FormerMember in reply to FormerMember

    Just booked my 2nd one for 1st April - hopefully I’m not being a fool ....

  • FormerMember
    FormerMember in reply to FormerMember

    Hmm, I thought the 2nd jab was time sensitive with 12 weeks being the optimal time frame, but it’s hard to keep up.... We have family in the Hebrides & their 2nd jabs have been brought forward too. Cal Mac start running their summer timetable from 25th April and last years booking have all been transferred. Colonsay could be a busy place this summer.... xx

  • FormerMember
    FormerMember in reply to FormerMember

    I had the OAZ so 8-12 wks is optimum & 1st was on 8th Feb so in the right zone - my CNS said she wanted me to have it prior to the next infusion...

    I think maybe they're trying to get the 2nd's doses before the shortage hits... Could be wrong 

  • I think you are right on all counts. Would be great to get it out of the way so there will be no interference with your treatments. 

  • FormerMember
    FormerMember in reply to Norberry

    And the vaccines a little less effective for cancer patients so it makes sense to have them closer together xx

  • Good for you Maz, we all know you are no fool!! Yes I read the second dose had to be 12 weeks after the first dose. We had the Pfizer so I'm not sure if the different vaccines have different recommendations between doses!

    Tinalay, I think when Calmac start back, lots of places will suddenly be crowded! We can't even go in for a coffee with a friend until 26th April, I think England's rules are easing a few weeks before ours in Scotland! At the moment, we are allowed to have coffee in the garden with one other household! But it's freezing outside, it was 2 degrees this afternoon!

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!
  • FormerMember
    FormerMember in reply to FormerMember

    It will be just over 8 weeks for me - they were giving it three weeks apart at the beginning so how did that work?  My GP contacted me so it must be within the time frame.  Who knows????

  • Just been invited for my second dose. First was at the end of January. So it'll be about 10 weeks. 

    Stuart x 

  • Brilliant I have to wait until May 

    Ruth