My apologies for my recent absence from our little community – there are two reasons.
Firstly, I was quite deeply offended at the recent unnecessarily heavy-handed manner in which the powers that be dealt with our “offensive” behaviour – I think they maybe should recognise the specific circumstances that bring us together in this place and cut us a little slack…
Secondly, whilst all of that palava was unfolding, I was also going thru the Scanxiety nightmare of my 9 month test & scans and whilst the CT Thorax/Abdo/Pelvis report was Stable Mable, the CT Brain reported 3 mets which, as many of you know, in late-stage SCLC usually signifies the beginning of the end…
And so it probably is but my Oncs are not letting me go without a proper “tear-up” as the proposed new treatment is RT Brain (planning session next Weds at CUH), followed by a second go on the original chemo of Carboplatin/Etopside (which apparently is effective at crossing the brain/body threshold) and continuing with the Atezolizumab. He even said that there are “other” possible treatments after that…
It is quite interesting in that SCLC is usually not treated with Atezo and coupled with the incredible response since diagnosis, my onc said that all normal bets are off because this is new territory, even for them… We’ll see…
Much Love & Huge Hugs
Stay Strong
SiT
Took delivery of a new cycle helmet - all singing & dancing, smart enabled size L (59-61cm).
Turns out, Brain cancer makes your head BIGGER... so I need XL!!! It did look ridiculous (& VERY funny) tho', a bit like the Bowlers on Laurel & Hardy... Ho Hum...
So, about to buy a VERY large tin bucket instead... Hahaha...
Please replace the dodgy mask with you wearing the helmet .. you must. Smart enabled, does this help you beat the queue at A&E?
So whats the latest on the delivery date, in the old days, words would be had from my Mum and matters would have been expedited.
Very happy to report I've just had Atezo Infusion No.17 (looks like I missed one out according to my onc - I'm NOT well you know) and all appears good with that.
Sides from WBRT were unpleasant for the last couple of weeks but quite a lot less than I had actually expected and now seem to be coming out the other side. Very drained, very quickly but I'll take that...
LeccyBike arrived Monday & spent TWO days putting it together... WHY do young people make tech things SOOooo difficult for old people? The LeccyBike is now and henceforth to be referred to as "The Bastard" until it fully redeems itself by providing untold amounts of joy and a semblance of independence!!!
Photos of me falling off (DON'T hold your breath Norbington) to follow (I'm a fairweather EVERYTHING & it's chucking it down here) - plus a few (many) degrees more warmth would help too...
TaTaForNow...
Nice afternoon in front of the cricket after your infusion.
Keep on keeping on, Si.
Stuart x
Dear lord I have a vision of you on your leccy bike, with your mask on, riding round the neighbourhood scaring the life out of people.
All jokes aside, Please be careful once you do get out on it.
To be fair Chelle, I wouldn't need the mask for THAT!!!! Hahahah!!!
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