“A SiT’s Progress”

FormerMember
FormerMember
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My apologies for my recent absence from our little community – there are two reasons.

Firstly, I was quite deeply offended at the recent unnecessarily heavy-handed manner in which the powers that be dealt with our “offensive” behaviour – I think they maybe should recognise the specific circumstances that bring us together in this place and cut us a little slack…

Secondly, whilst all of that palava was unfolding, I was also going thru the Scanxiety nightmare of my 9 month test & scans and whilst the CT Thorax/Abdo/Pelvis report was Stable Mable, the CT Brain reported 3 mets which, as many of you know, in late-stage SCLC usually signifies the beginning of the end…

And so it probably is but my Oncs are not letting me go without a proper “tear-up” as the proposed new treatment is RT Brain (planning session next Weds at CUH), followed by a second go on the original chemo of Carboplatin/Etopside (which apparently is effective at crossing the brain/body threshold) and continuing with the Atezolizumab. He even said that there are “other” possible treatments after that…

It is quite interesting in that SCLC is usually not treated with Atezo and coupled with the incredible response since diagnosis, my onc said that all normal bets are off because this is new territory, even for them… We’ll see…

Much Love & Huge Hugs

Stay Strong

SiT

  • FormerMember
    FormerMember in reply to Patmart

    Hey PatMart - your absence has been noted!

    Glad to have you back and many thx for your kind words.

  • Well , you have been lucky ..i did not had the hole for the nose in my mask lol...how are you feeling???

  • That is a medieval looking thing SiT. 

    I start on atezolizumabb next week and I'm concerned enough about just that. You're really going through the wringer. 

    All the very best to you buddy. 

    Stuart x

  • Do they send it home with you so that you can get used to it? It would terrify my little dog! 

    Sarah 

  • FormerMember
    FormerMember in reply to Pet1968

    A bit rubbish early doors, then brighten thru the day and headaches in the evening just about sums it up at the moment...

    Don't know how you did it without the nose hole!!!

  • FormerMember
    FormerMember in reply to Galilee

    Atezo is a breeze!!! 16th infusion tomorrow & I'm in, all done and out within an hour with no sides whatsoever.

    You'll be good old son...

  • FormerMember
    FormerMember in reply to Salis

    Aww - poor fido... But then - so would the real thing!!! Haha!

    They let you have it at the end of the treatment - The RO's at CUH paint faces on them for the kiddies but didn't tell me until the end of the 2nd week!!! Otherwise I'd have defo had an Adolf on mine!!! Hahaha!!!

    Might do it now...

  • Phoebe was scared of the statue yesterday, took ages to get her near enough to it for the photo. Glad you didn't get a spray on your mask, that would be too much! 

    Sarah 

  • Hi SiT Impressive mask, very stormtrooper.

    Hope you are dealing with the side effects ok, good luck with the infusion. 16th!! They soon add up don't they.

    Take care x 

    Chelle 

    Try to be a rainbow,in somebody else's cloud
    Maya Angelou

    Community Champion badge
  • Hi 

    I don't know how you do it, going through side effects, feeling rubbish yet you have the strength to come on here and give a greeting and a cheery message to others. Good on you mate. Btw I think NoGrinningrbs loves you to bits and when he's giving you grief it's his unique way of showing it Grinning.

    Tvman

    Love life and family.