The long middle

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I bet most of us “incurables” are faced with few people understanding our situation. Assuming we are “cured” when we look well or are not in treatment. Finding it hard to grasp we are incurable when we aren’t frail and gaunt and in a hospital bed attached to a drip. I thought this Guardian article on the long middle expressed it perfectly. 

https://www.theguardian.com/society/2026/mar/22/i-have-stage-four-cancer-there-will-be-no-cure-but-death-isnt-necessarily-imminent-this-is-how-it-feels-to-live-in-the-long-middle

  • Thank you for sharing, yet again this forum has the words I need when feeling low.

  • https://www.nytimes.com/2026/05/10/opinion/terminal-cancer-chronic-illness-health.html?unlocked_article_code=1.hlA.NZfs.mW-oce2zsWyE&smid=nytcore-android-share

    Good morning All,

    I hope you can open the link to this NYT article of 10 May called When Your Terminal Cancer Becomes a Chronic Illness.

    It uses the expression Living in the Grey to describe the Long Middle and one of the ideas that resonated with me,  and will I'm sure with others,  is 

    how to be present with the people they love in a timeline that keeps shifting.

    The article doesn't answer the question; it just puts it out there as one of the choices  in our lives today...

    The heat in Lanzarote has been great and I've been swimming every day. Heading home shortly to 10° C colder but longer evenings!

    x

    Sideways 

  • Thanks for sharing the article.  A good one.  

  • ^ "Living in the Grey" is quite a nice phrase!

    But it's not a consistent "colour" I think. Unusually, this a.m. I awoke to more of a black  -  just deeply sad I guess. Again not so much for me, although I do fear the eventual pain, but for my sleeping partner.

    I cannot put her through the hell I went through with my wife when she was dying from cancer. Yet how do I prevent it? All I can think of is behaving so badly that she throws me out, but that would leave very unhappy memories of our otherwise delightful  >7 years together. I must think harder......

    Good luck all, Dave.

  • Thank you. Another great article on this interesting subject. Thankfully I don’t feel Life to be grey. 

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