Hi folks
I just thought I would set you up a new thread for February - in fond memory of Ellie
I'll close the January thread so you can continue chatting here.
Please do feel free to set up your own thread, but we can always do it if you prefer
Hello
Thank you my names is Claire I’m 66yrs and was diagnosed with recurrence of endometrial cancer in April last year
it’s the aggressive rare kind I had 6 rounds of chemo last summer that worked very well and the plan was to repeat the chemo cycle every 6 months ish sadly my cancer had different ideas and came back with a. Vengeance after only three months
plan changed to immunotherapy which hasn’t worked
I now have a drain in each lung and start weekly chemo tomorrow
the intention is that this might work to hold the cancer and give me more time but I don’t think my doctors are that hopeful
whilst I’m determined to stay positive I’m terrified
I’m terrified of getting sicker and I’m terrified of dying
I have a wonderful life and don’t want to leave it
husband and close friends are great but it’s a very lonely place and I welcome this wonderful forum for sharing and supporting
thank for inviting me to join
Hi everyone, not been around much, so I need to catch up! Happy belated birthday Stella! I am glad to read that although it is still relatively early days post surgery, it you are pain free. Each day at a time, you will slowly see improvement, and by the spring I hope you manage to have a proper belated birthday celebrating as you deserve it!
A very warm welcome to the group Claire. I am also living with an endometrial cancer. Which is now in both lungs, currently waiting for my latest CT results. The wait never gets any easier. I am so sorry that the immunotherapy didn’t work, I will pray that the chemo works well. I know how scarred you must be feeling, but we have to hold the hope, cancer can take so much from us, but never let that hope fade x
Thank you chelle
When I share my diagnosis and prognosis with friends etc I still feel like I’m talking to someone else and it’s not me it’s happening to
I had the second drain in the day before yesterday and more drained off yesterday so am feeling better today
but anybody out there who has any experience of dealing with constipation I’d love your advice
I have IBS constipation anyway exacerbated by stress The oramorph I used to help the breathing wasn’t helping the bowels and I’m going through packets of senna doscustate and now dulcolax tablets and suppositories and still not helping !
but to end on a more positive note with so much fluid on my lungs I’m really hoping to walk the dogs today
thank you for being there
Claire
That is great to hear you will be able to walk the dogs today. Go careful though, I don’t know where you are, but I am in the south of England and the weather is awful out there, torrential rain and wind all night.
Please talk to your GP about the constipation, he may be able to give you something stronger than the over the counter remedies.
Enjoy your walk ! I will be heading out with my little pup this morning, he’s never put off by the rain, the wetter and muddier the better for him! X
Thanks I’m the Cotswolds we had snow last night but it’s turned this morning into a foggy mess of wet mud
I’m hoping it’s going to clear by late morning by which time I will have got my act together and be ready to
Oh the Cotswolds are lovely, we don’t get snow here in Hampshire, the odd time we do it is very little, and never lasts. We haven’t had proper snow, enough to build a snowman, for 8 years! All we seem to get is rain, rain and more rain! X
Hi Claire, glad to hear that you are out and about with your dog. Lucky you living in the Cotswolds. I am still in bed being lazy and contemplating getting up and walking my four dogs later. The mud in the house is horrendous and I don't seem to be able to keep on top of it. I have clinical hypnotherapy this afternoon, it is on zoom with Penny Brohn. They also do zoom courses on cancer and nutrition which might help with your constipation. I take Fruits & Fibres from Ortis. It looks like an oxo cube but has senna, rhubarb, figs and tamarind . I have been taking one a night since 2013 when I had cancer last time. Oncologist said it is okay to take. Chelle does your puppy like running through the mud like it's a personal challenge to get as dirty as possible? I have a nuclear bone full body PET scan on Monday and it is the one scan that make me very scared (don't know why just feel claustrophobic). Hope everyone has a good day.
Lee 2 x
Thanks Lee
I haven’t made it out yet with my 3 dogs but husband took them first a good romp early so they are quite happy
I know exactly what you mean about the mud is horrendous !
yesterday’s chemo seems to have sorted the constipation out big time !!!
to the point I’m thinking about taking something for the opposite problem
I’m determined to get out this afternoon I hate being indoors all day
Hi Lee 2, yes he loves running in the puddles and rolling in the mud. Once a week we go to a field which is fully enclosed, where he can run off his lead and have practice of his recall. I don’t feel confident enough to let him off his lead in public areas yet. We all come back covered in mud! Alfie likes to jump up at you, so a few laps around the field he is jumping up looking for a ball or a treat! Alfie has to go straight in the bath when we get home, luckily he likes that too. X
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