Sensitive subjects / the room

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I have noticed in one of the recent posts, mention of a more safe space to discuss the more sensitive subjects that we will all face at some point, like end of life. Here in the incurables we can talk about all that affects us with our disease, from treatment, emotions, fear and anger. We do have a dedicated space called “the room” that not everyone may be aware of. Here is a space away from the main group, where you can to discuss the more sensitive subjects life end of life care, or just have a good old rant and slam the door on the way out, with no judgement. Hence the group name the room.

If you go to the top of the page and click on the incurable  living with cancer title, it will take you to the main page where you will see all of the sub groups in our group. 



  • Oh cannot  read    as to small, though  have an idea of the topic, appreciated,xx

  • Hi Chelle

    Thanks for this post. 

    I'm not at all sure I agree though that The Room is an appropriate place for those choosing to stop treatment to post their thoughts. The Room has negative connotations, a place to rant and express negative feelings. It wasn't intended as a place for ongoing discussions.

    I don't feel negative about my decision to stop treatment. It has given me freedom, if anything, and I am enjoying my life. Personally, I think there should be a separate forum for those choosing to stop treatment, or even not to have treatment. I would like to have a space to discuss issues, away from those who are undergoing treatment. I wouldn't want to post these in The Room.

    I have had this discussion in the past with the Forum administrators, and got nowhere.

    Thank you for your suggestions!

    xxxx Kate

  • Hi Ellie, how are you? Is your eyesight better? I haven't seen you around lately

    Patrick xx

  • Hi not really  Patricia i am falling apart, when is  enough,   enough when i say so, told  my    oncologist that las week

    Hope your keeping well.

  • One thing I will say about The Room whilst we're on the subject . . . . . . 

    The intent really is good.  A space to rant.  ThumbsupWhite check mark  Poster receives the release from writing it all down.  

    But the deployment and design is RUBBISH.  ThumbsdownNegative squared cross mark

    This is because it's just a separate forum with no segregation.  Topics appear under the "latest posts" with no indication they are from "The Room".  Therefore people just read them without any prior thought regarding suitability or appropriateness.  They don't present with a sensitivity warning unless you specifically navigate to that forum.  

    So, nice idea, badly done.  I suspect the intent is beyond the capability of this kind of forum template.   

  • Oh Ellie

    So sorry to read about your update. Hope you are working with palliative care team and they can make you more comfortable. Sending you gentle hugs x

  • Hi Ellie,  I am so sorry to hear you are not doing well.  I am sending you love and hugs.  You are such a big part of this family on here.

    Lee 2 x