Progression

Hi tvman,  I am glad Mrs tvman scan was clear.  Do you think this heat upsets her tummy, as I know in extreme heat my stomach goes a bit bonkers.  I wish her well and long may her scans be clear x

Lee 2 x

I have a geneticin mutation, found out in February s year, started target therapy tablets at home. this year, mine are  Sotorasib/Lumykras 

Hi Donna, it's great that research has opened up new possibilities like targeted therapy, unthinkable just a few years ago. I hope it helps you look forward and maybe recover your sense of belonging. 

Hello Ellie 

I have also been prescribed Sotorasib. I'm hoping I get good results from it. Do you have any side effects that are a concern, I know they can be different for all of us, I'm just wondering what I can expect xxx

Thank you for your kind response 

Donna 

I only had one and that was chronic Diarrhoea and it was.

I was on 8 tablets a  a night,  oncologist said she can reduce them, to 4 tablets a night and if need be, then two a night, everything is good with the four.

Hopefully you will have no problems. 

Hello Ellie

Thank you for you response, it's always good to know what might happen.

Have a lovely evening x

Good afternoon all

I've been on the new treatment Sotorasib /lumykras for 2 weeks 8 tablets a day not easy to swallow at one after the other but I'm doing it, the only noticeable side effects I'd I'm fatigued so I find I have to have a nap in the afternoon but otherwise things are okay.

This living with cancer isn't easy at all, some days I feel so alone and isolated, this is more concerning than dealing with taking the medication, I feel so down I could easy give up on it all, I just want to be normal but that's not going to happen, worse I used to be so bright and had a great outlook on life but I seem to be drained of that. I don't go out cause that means I might have to speak to someone and I can't be bothered with that. I don't know what to do anymore. Just voicing how I feel.

Have a lovely afternoon 

Donna 

Hello Donna 

Your post reminds me of how I felt when first diagnosed. I know your situation is different in terms of timescales but the feeling is the same . It has taken me nearly a year to start connecting properly with people again . I didn’t feel part of my “old life” anymore and everyone was carrying on with their lives and I couldn’t . People were reaching out and trying to be supportive but I pushed most away and only saw a small handful of my friends for many months.

I found our local Maggie’s centre very helpful through this time, maybe there is one near you or somewhere similar which can offer support ? Practicing mindfulness and exercise help my mental well being too 

Please don’t be hard on yourself, I’m very slowly doing a bit more but also deal with fatigue from my maintenance therapy . Some days I’m not too bad but other days I feel wiped out which is frustrating but there are worse things which many folk on here have to live with 

I try not to dwell on what I can’t do but try to focus on what I can do but I’m certainly not full of the joys everyday and have realised that that’s perfectly ok . Living with cancer is incredibly hard and my emotional pain has certainly been harder than my physical pain so far 

I tend to see friends who treat me completely normally and who don’t want to know all the ins and outs of my health- some people are just darn nosey plus it’s in my head constantly, I really don’t want to talk about it when I’m out trying to be myself and not a cancer patient !!! 

You aren’t alone - I’m thinking about you as others will be in this lovely forum 

I wish I could make those feelings go away for us

Take care 

Lucy 

 Hamhat  I get it!! I completely understand how you feel! Living with this disease is rubbish! Nothing is easy! We were supposed to go to a barbecue the weekend, with an old friend, it was her husbands birthday. I really didn’t feel well that day, my brain really wasn’t working so the thought of spending time with people became even more overwhelming. I took myself to bed, we missed the barbecue. I text her the next day, and explained with a huge apology. I’ve had no reply. Nothing. I do not think I will hear from her again, that’s another friend gone. Xx 

I also agree with L1964 maggies is great for support when you are feeling like this. I know you won’t feel up to it, but once you go you will feel better ( that’s if you have a maggies of course) 

Sending you hugs Donna, be gentle on yourself you have a lot going on x