Lovely Morning chit-chat July 2025

I am not bad, my day was planned  out, you know that saying,   best  laid plans of mice and men,  only got one job crossed of my small list..

Had to phone Barts as got an appointment , so had to get hospital transport, i live in Essex and no way  can i get there, on public transport. Mission complete was hard work, my eyes have got worst,

 since my funny turn the other week, so mission completed. 

Lot cooler here and just had some rain was lovely to hear.

How  are you doing Patrick,?

 now, 

All good here Ellie, I have minor issues but complaing in the face of people who are are a helluva lot braver and resilient than me is not my style

Glad you are not having major problems that is always good.

My eyes do cause me to get  really frustrated i have to say.

Cannot read my books, or do my knitting, its funny what you take for granted till it is taken away. Simple things of life, but can see my wine glass , so a bonus lol.

Hi Ellie, Glad you managed to get transport sorted out but sorry your eyes seem to be getting worse. Early in my dx I was being treated for inflammation of the eye. It went on for almost 8 months, it turned out to be malignant melanoma. It was like a dark net curtain had been pulled in front of my eyes and nothing was clear, then it got worse I couldn’t go out alone. I feel for you it is very frustrating and affects every aspect of your life. Can anything be done to help?        You are a heroine to us all but I’m sure you would prefer to be able to read one of the…was it 8 or 9 books you bought.Have you tried Talking Books!

I hope your son and daughter are doing well and rallying round when they can! If you like the sound of the rain, as d9 I, I could send you a recording as we are getting plenty atm although it is hot and humid, not a good combination.

Hi everyone, hope everyone is doing ok. I have not been around for few days, and far too many posts to catch up on, so apologies if I miss anyone. My brain fog has made it very difficult these last few days to concentrate on anything, I know many of you can relate to that. I just shut down when it is that bad, probably not the best way to deal with it, but it’s all I can do. Just trying to hold a “normal “ conversation with hubby has been frustrating. I know he’s only trying to help, but saying the word I am trying to think of and finishing my sentences for me must be the only frustrating thing he does! 

LEC. I am glad the operation was a success and you are recovering well. I have been thinking of you.

ELLIE. I am so sorry you are having this issue with your sight. I have personal experience with family members who have lost their sight, and I know how scary and frustrating this is. Sending you a hug.

Eddie good to see you back! Hope you are rested, you need to look after yourself whilst you are looking after others!

Patrick, please never forget that whatever your troubles or ailments may be, they are just as important to us as the next person. We are in this life boat together, all trying to survive as best we can x 

Hi Chelle, I have exactly the same problem with words, I can't remember sometimes simple everyday words like bus, funnel and cafe. Just 3 of the words I have struggled with in the past. Been to the doctor's, did the memory test. Referred to hospital and did a slightly different test. Had to apologise because I couldn't remember any of the words she gave me at the start. Just 3 minutes later I couldn't remember the words. Very embarrassing. 

Had another brain scan at the beginning of July and it showed deterioration in a couple of areas so I will be called back for the memory test again but don't know when. Mrs Tvman sometimes finishes sentences for me which is frustrating. The medics however don't finish sentences as they leave me to try to work it out. 

It's embarrassing too if I'm telling someone something and I lose track of what I was saying and l have to ask them what I was talking about. When I say I can't remember names of people some would say they are the same but they're not. My problem is much much worse than that. Infuriating aaargh!

Tvman x

Hi Eddie, sorry I never realised you meant Northern Ireland. How long are you thinking of staying? If it's a weekend I'd recommend the Belfast bus tour which I'm told is very informative. I've never done it myself, I lived in Belfast for 21 years so never felt the need. Any longer and I'll give you a few tips, love to meet you too..

Tvman x

Hi Tvman

We had a coach holiday in NI 2 years ago, based in Belfast. It was really good!  We did the usual 'tourist' places, like the Giant's causeway, packed with people. My favourite was a visit to Mountstewart House and gardens. We also went on the bus tour of Belfast, and it was very good.

I would love to come back....the ferry at Cairnryan is only 45 minutes drive away for us! Many locals use it as foot passengers, to go shopping in Belfast for the day.

xxx Kate

Hello everyone

its been a while since I posted so big hello to all the new folks too. I am jumping in here as I see post about visiting Belfast as I lived there for years I can suggest a few places to go for a day trip. My favourite is to go to the cafe in the city hall at the top of the shops as it has some photos and info about famous places then pop on a bus up to Queens university and wander around Botanic Gardens right beside it that has a Victorian glass house and topical house and next to that is the museum. There is a lovely cafe opposite that does a great brunch.

And for those staying longer definitely get the train up the Antrim coast and visit all the amazing places around the Giant's Causeway that's where my folks live and always a bit hit with visitors xx

Hi Chelle and Tvman, regarding, brain fog",or CRCC, which is it's medical name, Maggies do a memory and concentration course, which helps you understand and manage the condition, and has helped me improve mine, a little piece of advice from the psychologist who ran the course, 1oz of dark chocolate, 80% cocoa minimum, daily can improve synaptic function by 30%, 

Eddie xx