T3N2M1...esophageal cancer.. palliative pathway

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Hi everyone...it's rather a relief to find this particular community.Ive had a bit of negativity on other forums when I had a little rant about the first cycle of my Chemo being cancelled last week (on the day) because someone forgot to order the drugs in time.I should say I'm a retired Theatre Nurse specialising in Anaesthetics so being lectured on how I need to understand the strain the NHS is under was a bit of an insult because I KNOW but it doesn't stop the feeling of being let down.The fiasco has sent me into a bit of a downward spiral I'm afraid after feeling until then the staff etc were there for me and I could rely on them.

So it's lovely to be here and hopefully be accepted warts and all Hugging

  • Awwww so cute Heart eyes...similar happened to me.

    I lost my old collie during pandemic. I said no more, because Megan was an epileptic dog.

    But I had a heart attack and walking was my rehab instructions and u can't walk with a dog lol...so Phoebe came into our lives, what a joy.

    .but then diagnosed with cancer. 1st doctor told me it was in my peritoneal, which thankfully told was incorrect. Every dog training session brought me tears because my hubby took the leash, because it was thought I wouldnt be here.

    Thankfully I am still here and my puppy is coming up to 2 years of age. So blessed.

    I am still amazed how far treatments have come. We don't know how long we have Pepperpot, it makes us enjoy our dogs and lives much more

    Hugest hugs and

    Phoebe 

  • Hi Pepperpot,  Welcome to our group.  This forum has certainly helped me so much and you can rant and cry and just be yourself.  I am sorry that you were let down.  I feel let down by doctors.  Went to doctor last year in March with hip and back pain.  Had X ray and they found two lesions but just told me they were benign and nothing to worry about.  Only because the physio therapist sent me for MRI have they found out it is metastatic breast cancer with wide spread bone mets.  I guess it is what it is.  Anyway I have four dogs and I walk them every day and it certainly keeps me going, never going to stop walking.  Just wanted to say welcome.

    Lee 2 x  

  • Hi Lee, 4 dogs? That must be a smile a minute living with 4 bundles of happiness 

    Tvman x

    Love life and family.
  • Hi tvman,  two of my dogs are chihuahuas and they are so naughty.  We have a catflap in the back door so all four of them can get into the garden.  So the chihuahuas will wee in the lounge (during the night) and then go outside.  I dont understand them I look at them on the camera the next morning so know who the culprits are.  I do love them but we have wooden floors in the lounge and the wood is rotting where they wee.

    Lee 2 x

  • Hi Lee your story sounds awful and I'm so sorry you were initially let down.FOUR dogs OMG I don't know how you do it.2;is plenty for me! Scout the puppy is So bonkers at the moment I'm going throughSobthe puppy blues Sob  but it will pass I know.Its so important for us to be out in fresh air and nature ...we can then binge Netflix in the evenings guiltfreeKissing heart

  • Awww Pepperpot, they are gorgeous, and well done for getting a second companion as they are so important to so many of us, making everyday a little better, Poppy too has a lovely place to go when I'm not here, I would say Poppy looks lazy, and not peaceful lol, I'm sure she thinks she's a cat, my apologies to everyone with a cat, but they do like to sleep, as does Poppy, and I'm sure they will help you to be around longer than you think 

    Eddie xx 

  • They are absolutely my focus and as I live alone it's wonderful to have movement in the cottage even though they drive me nuts at times.Esp Scout the puppy...

    Your responses are so great Eddie x

  • Hi Pepperpot

    Welcome to the group ! Your puppies are so cute. I have a cat Winston, he is rather dog like. Follows us everywhere and we walk him on a leash. 

    It is terrible what happened to your first chemotherapy. It takes a lot of courage to show up for the treatment and then this happened! Completely unacceptable. I had chemo cancelled on the day due to blood results. It is quite irritating as all my plans have to be shifted. I try to view it as an extra time off/ holiday from endless chemo. BTW do you have a port for chemo? It is much better than PICC line. Do ask for it. 

    Stella x

  • Hi Stella, I think I saw a picture of Winston ( love his name) on another post.Its great he goes for walks and having lost a few cats myself to RTAs it's much more sensible..he sounds special.

    When I start my Chemo next week ( I hope) I will be given some of the drugs via a small cannula in a vein at the hospital over 5 hours the rest I will take orally at home.

    I'm told my veins are really good ( this after years of being told they're rubbish) so shouldn't need a PICC. Swimming/ Aquafit is my "thing" so I'm hoping if I cope ok that they are right when they say Cycle 2 onwards I should be able to swim again.

  • Hi Pepperpot, Spaniels, especially puppies do get excitable, but its why we love them. I've always been a jack Russel man, even though they're completely bonkers,

    I sometimes think Poppy knows I'm poorly, as she's so much more affectionate than any other one I've ever had and very protective,

    I do have a partner, she has SAD, so goes to Australia for 4 months every winter, and I'm grateful for having Poppy around when Sheila's not here,

    Eddie xx