Long time lurker

Hi Helen

You can ask the physiotherapist on exercises on improving 

1 balance 

2 strength in your legs and core.  

I found just by doing some things gives me a sense of control and well being. 

I remember after I had my big operation, I went for a walk and tripped over. I could not possibly got up and was really embarrassed. I also lost confidence to go out on my own. But through exercise, I learned how to get up on my own and able to go out again. 

But this all takes time and persistence. Be kind and patient to yourself. Keep Going x

Hi Helen 53 

Good on you for posting, you'll find a lot of support here, as you've found from the replies. I'm sorry to read of all that's been happening for you. 

I had endometrial cancer as well, a rare squamous cell type. I have also been left with issues after treatment but I am lucky in that the treatment worked as I have been stable since Sept 2022. 

Short trips out may help you gain some confidence back re going out. I remember when I was on chemo and it was the first week after, when the side effects are worse. I was getting over it a bit but had low energy and felt very weak. We drove to the seafront, I could only walk a short distance and had to sit on a bench but I was pleased to get out as the weather was lovely. 

A x

Hello and a very warm welcome and sincere apologies it has taken me so long to welcome you and reply! A lot has been going on!

Good for you taking the plunge and posting here. I think most of us read the posts for a while before actually posting ourselves. I also must congratulate you on updating your Profile, which I read the other day. I keep meaning to update my profile but to do that, I would have to start it again and make it more concise as it is far too long. I had no idea when I started writing it, I would still be here after all this time, so just wrote it as it happened, sort of like a diary. It helped just writing it down.

Anyway, I am a Night Oel because I don’t sleep well due to nerve pain after a very wide excision following a Malignant Melanoma removal on my shin, a groin dissection,  having a pin inserted between my shoulder and finally a spinal decompression. These have all left their mark with nerve pain. I also have Osteoarthritis which was accelerated by the Trial Drug that has kept me alive for this long, so I can’t complain! I also live in Scotland about 12-15 miles from Glasgow but in Bishopbriggs’s in East Dunbartonshire, so we are practically neighbours! I am looking forward to chatting with you and getting to know you but for now I am off to do something online jigsaws on my iPad before trying again to get some sleep! Well done for finally joining in!

Hi Stella,

Sorry that I have taken so long to reply.

No reason really, just laziness.

I have the physio next Thursday and I will ask her about the balance and strengthening exercises. That is very good advice.

I really need to overcome my fear about the fainting to make real progress.

Before my last fall I had been doing really well and it has been such a setback for me.

Also, it has been really cold here in my part of Scotland and I hate the cold.

I also have a scan appointment on Tuesday so I think that is playing on my mind too.

I really need to give myself a good talking to.

Have a lovely weekend.

Helen 

Hi Annette,

Thank you for replying.

I have never actually been in Bishopbriggs but have passed through it a few times on my way somewhere else. It seems like a nice place to live.

We have been to a pub/restaurant a few times just outside the town. It is called The Stables. I expect you know it. I love its setting beside the canal.

My goodness, you have been through the mill, haven't you? No wonder you have difficulty sleeping.

However, as you say, the trial drug has kept you alive this long so if the pain is the price to pay for that, so be it.

I have been on Letrozole tablets since January 2023 and so far they have kept me stable.

I have my next scan on Tuesday at the Golden Jubilee in Clydebank as Lanarkshire couldn't accommodate me.

To be honest, I'm quite happy with that. Although it's a longer drive, it is such a calm, peaceful hospital while the ones in Lanarkshire can be quite manic.

I've been sent there twice before for scans so I know the layout well.

Can I ask if you are being treated through the Beatson?

If so, I would like to talk to you sometime of your thoughts about it.

Have a lovely weekend,

Helen 

Good morning Helen,

Yes I do attend the Beatson. I have just sent you a Friend Request, so if you accept it, I will reply via the Personal Message page here.

However I am heading out shortly so won’t be able to reply until later. Enjoy your day.

Hi Eddie,

Sorry I made a mistake about the number of grandchildren you have. I knew it was double figures. You sound like an amazing dad and grandad.

I know all about large families.

My husband is the eldest of seven children, five girls and two boys. All of them have a wife or husband, except one.

They have produced eighteen children, ten girls and eight boys, ranging in age from 22 to 41.

One of these children has a wife, some others have live in partners and some others are single.

There are now six great grandchildren in the family, five girls and one boy, ranging in age from almost one to 13.

So, you can imagine family gatherings are very lively.

I only have a younger sister. Between us we have six children, three boys and three girls, ranging in age from 41 to 48.

She has five grandchildren aged 6 to 22, three girls and two boys.

I have a 13 year old granddaughter and a 7 year old grandson, her brother.

Much more calming.

I hope you have a lovely weekend.

Helen 

Hi Helen, please don't apologise, and thank you, my family is everything to me, and I think I'm a good dad/granddad, but I've had wonderful support from my partners.

Wow, your husband's family is some size, and I hope they are all doing well, and your sister and you aren't far behind, and I can imagine a big family get together must take a little planning, but what a wonderful occasion they must be, 

We have a "big," family dinner most Sundays, when between 12 and 17 turn up, but having over 40 sounds amazing, PS I have 3 girls and a boy, 

Eddie xx 

Yes Eddie,

Things do need a bit of planning.

I've told my children that if they ever decide to marry just elope.

Christenings etc are bad enough.

I made a mistake when I said that my children and my sister's children's ages ranged from 41 to 48.

It is actually 35 to 48. I forgot to include my two younger children's ages in that. Don't tell them.

I also forgot to include my sister's partner, one of my niece's partner, my nephew's wife, a Daschund and two cats.

My husband's youngest sister married a man who was also the youngest of seven children.

I've lost count of how many there are at their family gatherings.

Enjoy your dinner with your family tomorrow.

Helen 

Hi Helen, hahaha awesome,  what a clan, I kept it to my kids and grandkids, I would struggle to remember my brothers kids and grandkids, never mind aunties, cousins and in-laws, like you I have no idea how big our extended family is, and fancy forgetting your youngest kids, I won't tell a soul, If you don't mind me saying  it seems your relationship with your sister is very special I  grew up with 4 brothers, but have only one now and though we see a lot of each other we tend to do our own thing, two of my kids married, I never did,  though I was with my first partner 41 years and have been with my present one 17 years, and are/were thinking of getting married last year, but my eldests diagnosis has delayed?, that, and no family dinner for me tomorrow, I'm at neurology, then visiting my kids mum in hospital, though if all goes well, I  might make pudding, yummy, take care. 

Eddie xx