What does one do , Opinions greatly appreciated

Hi Minmax, great to hear your stable and pain isn't too much of a problem, Looks like we have a few things in common, my consultation is on Monday have scan results, due, my cancer is stable"ish",we both have dicky hearts and we both like holidays, well my friend as I have been on 7 this year, I think you can guess what my answer is. Absolutely get yourself off, and enjoy life while you can, I did mention the holidays to my consultants and they gave me the green light, just be careful they said, best wishes at oncology appointment, I hope your scan brings you good news.

Eddie 

Hi Minmax, Of course you want to go on holiday and live your life, so just do it! To be honest no one knows what the future holds, not even your oncologist. The proof is right here in this group. There are many of us who have lived well past our prognosis. I just try to take every day as it comes and enjoy every minute of it!

Hi Minmax

I say 'go for it'!!

What's the point of all the hard work and determination you've put in to being here, and all you've gone through, if you don't make the most of it now?

Just choose your holiday destinations carefully! Maybe somewhere with good health facilities, should you need it. Hopefully not! But trekking across the Sahara may not be the best idea....

Send us a postcard!

xxx Kate

Thanks All as you all know we are forever dealing with appointments , treatments etc and it seems never ending. It's like waiting around for the next  diagnosis and treatment plan , Well that's the way I feel now but my mind is telling me to go and do a few things . Suppose it doesn't help being on my own. I dont have this mad rush to do anything to be honest and enjoy my own company. I suppose it's the uncertainty will I be fit and able to do what I want later down the line if I am here . I might ask the oncologist a few questions again as he gave a terrible answer about dying etc . Bleeding to death isn't an answer you want to hear lol All  the Best Thanks Regards Marc  

Replying without reading the existing posts first!  

First of all I want to acknowledge your positive attitude.   I think you nailed it - it's not about sitting around waiting to die but living with it.

I had a conversation with my onco about 6 months ago when I decided to stop my treatment.  I needed to know what might happen going forwards and the red flags I should look out for.  I know it's for a different cancer, but learning about different cancers on here has not been a bad thing.  I am metastatic renal cell carcinoma with a 23mm tumour and I was on nivolumab and a modi-1 vaccine, part of a trial.  

He said that the longer you remain with no re-growth or treatment side effects then the longer that was likely to remain the case.  He said if it was going to come back then it would likely do so in the first 6 months.  

Travelling and holidays are a good idea I think.  None of us know what the future holds - the key is accepting and adapting to the uncertainty.  

Hi Mmum Agh that is very interesting to hear about the 6 month occurrence which I have more or less taken for granted as I have so many sites but hey hoo I live in hope . I mean worse case I will have to have treatment again , No big deal. I am just happy they can treat me to be honest , Yes I fancy a holiday , I would love a motorbike a dog and a girlfriend but can't be dealing with all the aggro lol All the Best Minmax 

Hi

I was told in Feb that I had under 12 month but we all know it is just someone's opinion and even the Consultants don't really know.  I thought I would never go on holiday again..  I went to Cornwall in Feb which was great as stayed in accommodation overlooking the sea that I would not have been able to afford in the summer.  I had a scan in April then saw the Consultant. I felt okay apart from back pain sometimes.  He said I was stable.  The tumour that chemo had shrunk had not grown but I had new tumour on the other side but it was not very big.  I asked about going abroad and he said as long as you feel alright, he told me earlier how well I looked and he was quite surprised by that.  So I wanted a holiday in Cyprus with my kids and grandkids as it was always our family destination when kids were young.  A heck of a job sorting a date that suited but we went.  The worst thing was insurance.  I went through a company called Insurance With and had to have someone ring me for the screening. They ask tricky questions about have you been given a prognosis etc.  I got through the screening but it cost me over £500 which I just went ahead with.  I was well throughout the holiday as I knew I would be.  We then had another holiday in Cornwall in a static mobile.  Again all fine.  In August I had another scan and was told there was some increase on the left but not to bad and he pronounced me still stable. I said do you think I could go abroad and again, yes if you feel fine.  This time I did not want to pay £500 for insurance so I did some research on this site and found a company called Heymondo.  They will insure you for a week, no questions asked and it is just for any emergency whilst you are on holiday that is not connected to your cancer.  I felt this was right for me as I was stable. I needed a wheelchair and hired a scooter in the resort but I was well.  You always worry about tripping and spraining something or having something stolen so insurance is needed.  Cost me £38.  I was amazed.  Sorry for my rambling but the Consultant said to me just get away and do whatever you want whilst you are well because you do not know how you will feel in a few months.  That was such good advice.  Hope that helps, you get on holiday.

Julie G

Hi JKg  That is  good advice . The Oncologist and surgeon both told me to just go out and enjoy life and try to forget about the cancer . This is easy for them to say as they dont have to deal with it. This was a good while back and have since had treatment again.  I suppose the goal  posts are moving all the time. I had a friend given less than 2 years prognosis and that's over 7 years ago. Brother in laws terminal and into year 6 and going strong. Never give up hope I say . All the Best Minmax