Struggling with uncertainty

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Hi. I'm struggling with the uncertainty of life now. I'm trying hard to accept I have incurable cancer, and I know I've no choice in that, but I can't imagine what my life is going to be like living with it or how it will feel to live not knowing if I've a year of life or 5 (however many) years of life left. At the moment I'm early days, cycle 3 of chemo (diagnosed in June). Had a PET scan last Friday and will know any progress on 12 Sept. Post divorce I wanted to date and enjoy meeting new people, now I think that's pointless because who would want to sign up to me! I really don't know what I'm trying to say. I'm maybe looking for reassurance that post initial treatment and when on 'maintenance drugs', a relatively normal life is achievable? I want to be able to work, go on holiday, live as I did before. Unrealistic? Xxxx

  • Do anything you want if it cheers you up! You deserve it!! I usually treat myself to a new book if I'm feeling low. 

    We need to give ourselves treats every now and again.

    XXX Kate

  • Hi

    I think you need to give it more time.  You say yourself it's early days for you.   

    I also had the clothes thing (  and @anndanv) Laughing but for me it was a new winter coat and walking boots.  But exactly the same rationale.  Too much hassle for family and I couldn't justify it, if I was only going to be around for 3-4 years.  I can't remember when I turned the corner and found a coping mechanism for the uncertainty. At least a year in, I think.  I'm 2.5 years in now.  In the end, I realised I couldn't change the outcome, so I'd have to learn to live with my situation.   People have mentioned on this forum before, it's about "living with cancer".  

    Normal life is definitely achievable.  I think that comes after many months of treatment and you can start to read the room and get a picture of what's going on.  BUT.  I would say my treatment has worked as designed.  Would I have managed the switch/acceptance if treatment hadn't worked?  No idea.   

    At the start of treatment I rushed in and nothing was too much bother because it was The Fix.  After 2 years of treatment the benefits had stabilised and going in was such a hassle and an inconvenience.  Time really helped.  It changed my state of mind.

  • Hi Just thought I'd drop in and on the clothes thing, at first I didn't buy anything for myself similar thoughts to you. Then I got cheep clothes, around the second year, then 3rd year well back to normal  decent clothes and shoes. You live the best life you can. I help in a charity shop twice a week to cover ther lunches 2 hours on the 2 days. I go out for meals and short breaks away at first now I do proper holidays. Its up to you what you do, but like Mmum it's a bit early, give yourself a chance. XX

    Moi

  • Hi Gotthistogether What you are saying is perfectly normal and still early days. Reading this thread just mirrors similar for me , splitting from partner being alone clothes etc , My son said to me the other day was I opening a thrift store lol. It's a hell of a shock to the system regarding everything. I would love to date but just dont need the stress of it , Was talking to a woman I know and she commented like I had a balloon on my neck which I thought was a bit off considering its a superb bit of surgery , All these things will take time to sort themselves out etc , I have been treated since 2020 on and off and really thought it was curtains years ago. I think you are doing fantastic putting this post up and really brings a smile to my face what some people have  responded  with , enlightening and uplifting  to say the least. Thanks May We All Have Happy Days All the Best Minmax