when you start feeling frustrated

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Hi folks

I haven't been posting for a while because I've been in a bit of a slump. I was staring to see some progress with my chemo - the highs of seeing cancer makers finally go under 100 - and the lows of trying to do things and not being able to. I am so frustrated. I know what I have is incurable but I am trusting the process that  going through all the hours of chemo will eventually give me some quality of life back. I can now walk a bit and do stairs and got do short drives in my automatic but there are so many things I can't do like gardening or walks in the country which were the things that gave me peace and happiness. It feels like I have plateaued and I worry it won't get better than this. Has anyone else been through this and how did you deal with it?

  • Hi TheaT

    Yes, I think you're right about this being a kind of grieving process...sometimes I feel calm and accepting of my 'lot', other times I feel regretful that I haven't achieved everything I wanted to, and yes, I have days when I don't do anything much at all!

    The support and exercise class sounds like an excellent idea! You don't have to enthusiastically join in with the exercises, just do it at your own pace! The important thing is that it gives you a chance to connect face-to-face with others who are going through exactly what you're going through. Just see it as a chance to connect with others. This cancer experience can be very lonely and isolating. I wish there was something similar on offer where I live.

    But do keep posting here....it's good to talk!

    Hope today is one of your 'good' days!

    XXX Kate

  • Thanks Kate today is a physically challenging but Im mentally feeling better kind of day.

    I am grateful to have finally found a place that offers support and exercise specially for people with cancer. This year has been about surviving treatment and understanding everything. I have been so isolated it was worse than the covid lockdowns!

    So many of my friends have disappeared or only want to hear the positive things - they can't cope - and its exhausting to be 'up' for other people. I was chatting to other patients at the chemo unit and realised how relaxing it was to talk to people who understand so I think it will be a relief to go along. on the other side I have lost a to of confidence so have to steel myself for anything new now - who is this version of me!!

  • Hi Thea ,Please try the coffee morning and exercise group, they have helped me and many others on our journeys and finding 1 group of people you can relate too will help you better understand your emotions and physical limitations and you will get advice and support on ways to manage or even improve your situation,  as well as finding out about other support groups or activities that may be available to you. We all have to move on from our old life and make a new one, and it can still be a good one, I am sure you will find the  unph to do so ,  you are stronger than you think, I have made some wonderful friends since my diagnosis over 2 years ago and everyone is or has been on the same journey, having friends  you  can talk  too who understand what it's like to live with terminal cancer has been a big help emotionally and has reduced my down days and despite everything life is good , best wishes 

    Eddie xx