Where does one begin at the start..
End of November 23 as nice had brought in new guide lines,, for lung, cancer patients had to have a Brain mri scan, no problem thinks i..
Went for the results and i had what they called a blip, they did not know what it was, told maybe a stroke, a small bleed or cancer. and was referred to a big hospital in London.
I see a Nero surgeon, who ordered a special scan, this blip still there and had not grown, after another scan went back, told i had a new primary brain tumour.
I was knocked sick.
Then another scan and the results where, no it is cancer come from the lungs, this was the 7th June.
I was informed how they would go ahead, 4 hour operation, and what problems, it may or could cause.
I was devasted to say the least, but an MDT meeting was taking place, 17th June, and i would get a call that day, i waited 12 hours no call.
I phoned to speak to the sectary she does not work on a Tuesday, ok will call Wednesday.
I had my 3 monthly review on the Wednesday with my Oncologist, i told her what had been going on, she was dumb founded, and told me, my review was still stable. for my lungs.
All the letters i had from the big hospital , saying what was going on, she did not have any of them. Glad i took all mine, and she photo copied them to put in my files
I phoned the sectary when i got home, she informed me a letter us being sent, which i got today.
Another scan in August and seen the surgeon in September.
The letter reads, had the MDT meeting, and the Radiologist, now do not think its a tumour, or come from the lungs.
Catch 22 situation, not a nice place to be, though onwards and upwards, got to pull my self together.
It has been a hard time, mentally, lost my sparkle and mo jo.
Though come Tuesday am getting my cataract done
Hi ellie 73 I knew you were due results, but didn’t like to pester you and ask, I knew you would up date us when you were ready.
Like you, not really sure what to make of all that! So maybe surgery not needed after all ??
it certainly feels like you have been pushed from pillar to post since the initial brain scan. Makes you wonder if the NICE guidelines are correct, or whether to wait for symptoms because all the worry it has brought you and your family, it makes you wonder if it was worth it?
It makes me sad to read you have lost your sparkle, but you will always be bright and sparkly to us! I really do hope that the August scan brings better news. Let’s celebrate that the lung scan is stable! That is really great news, and a shame for it to get missed amongst all the other worry you have.
Good luck with the cataract op, you will definitely feel better once that is done. Thinking of you x
