Feeling low

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This is difficult to write, especially knowing that others are experiencing very difficult times right now.  I have an incurable blood cancer (ET), and although my symptoms/side effects of the medication are manageable I’m finding I just can’t feel positive about anything. I don’t have the energy to go out and enjoy things like I used to (I do occasionally see friends for coffee). I don’t have children and my elderly siblings live at least an hour away. I am married but my spouse is out at work during the week so I spend a lot of time on my own which I know isn’t always very helpful.  I used to be creative with painting and making little stained glass pieces but I can’t see the point of making anything. I don’t play my instruments anymore either. On the face of it I seem fine but I’m good at hiding things. I know one or two of my friends find it uncomfortable dealing with my condition and how I’m not the same person I was a few years ago. Anyway, thanks for listening. I don’t like being like this and I don’t want to go on any medication to make me feel better, as I’m on enough pills as it is!  I seem to have been giving a lot of emotional help to others recently too, which I’m happy to do, but I’m now feeling a bit thinly spread.
Sending you all love and support.  

Skaro

  • Hi Suzy, it's been a while since your last post and was wondering how you are, I hope you are ok and just been busy getting on with life and hopefully a trip or two to the seaside.

    Eddie xx

  • Hi Eddie.  Bless you for asking.  Not doing too well but mainly to do with my sister’s ill health. We managed to get her to hospital on Saturday but have had bad news today in that her bowel cancer has returned and is lymph nodes, and possibly her liver.  She’s 80 and alone.  I’ve been struggling to help but because of my fatigue I’m finding it all overwhelming. The other urgent thing is that her poor dog, and elderly collie, is in the house on it’s own with friends coming to feed her and walk her.  Given where she is - Dunoon - there are no pet  services nearby, the kennels are full, and dogs trust won’t reply for days.  I’ve given this job over to my brother as I can’t cope anymore. I wish I could do more but I’m struggling against my own condition. No idea if my sister can be treated or if it’s too late.  We’re a tiny family and there are no children.  My poor husband is 60 today and has spent most of it helping me, and  consoling me.

    It’ll work out eventually, but I’m criminally tired.

    Sxx

  • Hi Suzi, I am so sorry to hear about sister, such an awful thing to happen to her, this disease is so cruel nobody deserves it, especially someone who has fought through it once already. I can imagine how heart breaking this is for all your family, I hope something can be done for her and she gets the treatment and care she deserves. Suzi, I'm sure you are doing all that you can for your sister, to help and support her through these difficult times, but there is only so much we can do whilst we're fighting our own cancer. I do no know if your sister will be offered treatment, I hope something is possible regarding treatment and she gets the care she needs to manage any symptoms and keep her comfortable. Suzi I will have everything crossed for your sister that she gets a treatment plan, If I or the forum can help in any way please ask. My best wishes to all your family, please take care.

    Eddie xx

  • Hi Suzy, I too have been wondering how you are as I sent you a couple of Private Messages on the PM page and had wondered why you hadn’t replied! Now I know! Poor you and I hope they have a plan for treatment for your sister. It is very difficult when you feel tired yourself to be able to find the strength to help your sister. I am sure your sister will understand the situation you are in. As long as you keep in contact with her by text or phone, she will know you are there to support her! I do hope you feel better soon and your sister has Options!

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!