Some good news

Hi Minmax 

I can empathise with you on the explaining our illness front. I recently attended a zoom meeting with a charity for my type of cancer. I'd not attended one before, whereas everyone else at the meeting had. Everyone introduced themselves and explained their surgery, treatment etc. I was left till last as I was new. It was like the horror story no one was expecting. I found myself getting a bit choked up and it was like reliving it all again. I don't think I'll be attending any more as it didn't have a good effect on my mood. 

A x

Oh Sistermoon that sounds dreadful and what a chocker. It really is hard trying to explain something so emotional. I think you are spot on about reliving and also the issue is once you start you can't stop and if you do you get super emotional all of a sudden and become literally speechless which makes the build up to burst into tears even worse . I think it would be easier to talk about sex or anything else for that matter . All the Best Minmax  

Ee Minmax you gave me a chuckle there. You're exactly right about explaining our illness. I don't know about talking about sex mind haha. The bits don't work and I've forgot what to do. Sex and cancer - Let's talk 

I've linked this for you in case you're interested  

A x

Hi Minmax, just reading about you being mis-diagnosed, shouldn't be happening though as you know it does, happened to me three times, recently told i have CKD and lung cancer, which thankfully wasn't the case and treated for whiplash when i had double wedge compression fracture and 3 damaged discs in my lower spine It's so hard to be able to trust them, when you need to more than ever, best wishes.

Eddie

Hi Minmax and sistermoon, I don't mind talking about sex and have posted on the sex and cancer - let's talk thread, and i don't mind talking about my condition with others on a similar journey, though talking to people who have little if any idea of what we are going through has become a no no for me, as you say it's very emotional to share but if it's helping others, it's worth it, and will no longer share my story with just anybody anymore, take care.

Eddie

Hi Kirsty sorry I'm a late replying and sorry to hear about the new conditions ,crap isn't it one thing after another hope you get some good news going through similar here ups and downs keep smiling all the best Ryan 

Hi Eddie That's mental what a screw up on their behalf Regards Minmax

Hi eddiel 

Ive been meaning to post on the sex thread but couldn't find the right words. Finally posted there today, concentrated on the changes to my body. Don't be put off by people Eddy, if they don't have the understanding then that's their loss. I've finally learnt to let people be.

A x

Hi sistermoon, I love people and it takes a lot for me to not like someone and if i can help them in any way i will try, and i understand unless your in our club it's impossible for them to fully understand what it means, I have read your profile and i understand the technical side of your journey in part but know little of how your treatments or meds affect you day to day or long term, physically or emotionally, but i do know what it's like living with a terminal diagnosis, which is very hard at times and stupid insensitive remarks i can do without, 

Eddie xx

Hi eddiel 

You've spotted my strategy, focus on the medical, technical side and the other side of it is still a work in progress. I am not on any cancer meds or treatments at the moment as I am currently stable. 

When I first joined the forum I remember reading about a member that kept little card messages in their pocket and when someone made an insensitive comment to them, they would hand them a card and walk off. I don't know what the message was but it's one way of dealing with it.

Hope you have a good day

A x