Well folks after a short absence, I’m back but in a lesser capacity.
To say the last couple of months has been hard is an understatement. The time after my first Immunotherapy infusion was taken up by getting pain meds and constipation under control. “Next treatment was rushed into A&E as very poorly, lot of pain, sweating, shivering low temperature, dizzy, vomiting. It was caused by acute cholecystitis. An inflammation of the gallbladder. Was in for 10 days on antibiotics, fluids, analgesia, anti nausea - not pleasant.
The third infusion seemed to go well then a week later back into hospital with the same symptoms. This time it's just 7 days.
I’m now as weak as a kitten with no energy. Spend most of my time shuffling from bedroom to bathroom to conservatory with naps in between. For someone who got up before 7 every day, walked 3-5 miles daily it’s torture. Didn't think it was possible to sleep so much.
My dosage from one of the drugs had been halved after the first problem and then was further reduced after the second. A CT scan I’d had in hospital.had shown little reduction on the tumours so my Oncologist had started to debate whether to continue with treatments which would be curtains for me. Anyway, I upped my dosage from 8mg to 10 and my pain has lessened. I'm feeling a bit better so I hope things are working and killing the little bugger.
My last treatment was Friday the 13th so I hope that is not an omen So far no problems fingers crossed..
My typing is taking forever so shorter posts! plus my laptop seems to weigh a ton. I hadn’t looked at the site for the last few weeks so l take a while to catch up with folk.
Much love Barb xx
Hi Annette. I have Zomorph, 10mg in the morning and 10 at night. Oramorph as and when needed but I avoid as it makes me like a zombie I have liquid paracetamol instead. The lenvatinib is the cancer fighting drug and I'm hoping less pain now I've gone up to 10mg from 8mg means its working.
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