Long time since I posted

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Hi everyone, It’s a long time since I have posted. My incurable status changed to inactive, that was secondary breast cancer, now I have been diagnosed with lung cancer. I have an operation booked for the 18th August. Not sure if I should be posting on here or not really but still. This is where I used to post. I have been lurking for a long time and keeping up with all the news.

Maggie x

  • Hi Alive

    Sorry you have now had to come here, though you know you will be made very welcome/

    I remember you posting a while back, though i cannot remember chatting, you know you can ask anything and some one will always be able to answer you.

    I could never have surgery, only chemo immunotherapy then radiotherapy.

    Just thought i would welcome you.

    Ellie xx

  • Hi Maggie, like Ellie I remember you well from quite a while back. Pleased to hear from you and best wishes for your treatment.

  • Thanks Ellie, I wasn’t really sure if I should but then I knew how much it helps everyone to have chats, and sort out worries. It’s just 1 year since my son was diagnosed with bladder cancer, he opted to have his bladder removed and has done really well. Having to tell him I had cancer for the 3rd time was very hard, as it bought back to his mind all that had gone before, including his own struggle. I know I found his diagnosis far more difficult to come to terms with than my own.

    I look at all the people on here and realise that a lot of us have been around for a long time, it’s very reassuring to see that. 
    Maggie cx

  • Maggie

     I fill your pain, i have been there as well, though in a different way.

    I did three years treatment, finished 24thDec 2018, my hubby got diagnosed  Dec 2018, to me this is not fair, and then he passed 10months later.

    Things where starting to pick up, then my Daughter got Diagnosed last year with Breast Cancer, mastectomy, reconstruction , and that all went wrong. She was frighten to tell me, because of her dad and also me, so i fill for you.

    When she told me i was devastated only way i could describe it. Though she needed me and was with her every step of the way, like she had been for me and her Dad.

    Life is shit  as they say, and when you fall in it, you have to come back up smelly of roses,

    It is a struggle but you will get there i am still kicking though at times its hard,

    Always here for you.

    Ellie xx

  • Hi,

    we are here to chat to you.

    whT operation are you having ? Is it a lobe of your lung to be removed ?

    it is a lot to go through it again.

    Good luck xxx

    Ruth 

  • Hi Maggie, Welcome back although I'm sure your not happy about it, I am so pleased you thought of us. 
    Yes, I'm still here, hanging on in there, although I haven't updated my Profile page for a while. I need to summarise it before adding anything else.

    Since last we spoke, a lot has happened to you. I am sorry to hear of your son's diagnosis, I think any parent would choose to take the dx rather than their child have it!

    Life is cruel isn't it, I think on here we know that well. I take it when they have organised surgery for you that is a positive thing. I certainly hope so!

    I'm sure you will recognise quite a few names here and I am sure they will remember you and we will support you all we can, just as you have supported everyone in the past.

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!
  • Hi everyone and thanks for replying. It means a lot.

    My op is to remove 2-3 segments of my right lung, which should remove all the cancer. They are hopeful that it is a primary cancer and not breast cancer as it’s easier to treat. I didn’t know but apparently the lobes are further divided into segments and there are 10 in the right lung. So I will still have 7/10 if that lung left after surgery!! The things we learn about our bodies when we have cancer are really surprising!! I wasn’t aware of how much I didn’t know before! Anyway all being well and with no nasty surprises having the op will completely cure me. I have my fingers and toes all crossed! I had decided that if chemo and hair loss was going to be on the cards I was going to go for a pink wig, because I didn’t want to be too boring. It may be that I have dodged a bullet. I am sure my kids are relieved, they don’t like being embarrassed! 
    I had my admission letter today and was troubled. It mentioned needing to have someone with you for the 1st 2 weeks, and I live alone. I phoned up and was reassured that as long as I can summon help if needed I would be ok. I want to come home as soon as I am well enough, to recuperate in peace. I have got ready meals in the freezer ready so I am sure that I can look after myself without a problem. 
    Annette it is lovely to see you here still, you have done really well. It is so good for morale to see that some people have defied the odds and kept going, it gives us all so much hope. 
    One thing that surprises me is that it’s 19 years since I first got to know cancer. I never wanted to but it has passed so quickly!

    love and hugs

     Maggie xx

  • That operation sounds very positive.

    when do you get it done ?

    Good to get it over with asap xxx

    Ruth 

  • Hi Ruth, I go in on the 18th and should be operated on the following day. It’s not long now. 
    It all started in May with my 1st x-ray, then another a month later, followed by a Ct scan. Then I got Covid. After that it was lung function test, PET scan and now the op to come. I think it’s all been very quick really. I can’t fault the NHS at all.

    I think it is all very positive, I have been very fortunate to get it all seen to so quickly. 
    How are you? 
    Maggie xx 

  • Hi Magie and thanks for your kind words, it hasn't all been plane sailing but I'm sure you know that! I was very worried when you hadn't posted for so long but sometimes you are just too frightened to ask, to say I am relieved is an understatement!

    I'm so pleased you are having the surgery that will hopefully make sure you have finished with all this stuff. As Ruth said it does sound very positive and fantastic your team have moved things along quickly for you. The NHS seems to be there when people really need it and I am so pleased you haven't had long to wait  because it saves you thinking too much about it!

    I know you will want to get home ASAP after the op, as we all do, but sometimes an extra day or so being looked after by our wonderful nurses can make the difference between struggling and not struggling when you get home. It is easier to get peace and rest at home but sometimes we forget just how little we do in hospital, then when you get home, sometimes it is an effort to fill the kettle for tea, or have a proper wash or shower. As you may have guessed, I say this from experience. I had a spinal decompression and even although I still use double crutches, I was up on my feet the same day and insisted I was ready to go home 1st thing in the morning. The surgeon advised 5 days in hospital before the op but I was determined I wasn't staying that long and I managed to convince everyone I was good enough to go home! What a mistake that was!

    Anyway it is not long until the 18th, which is 2 days after another birthday I get to celebrate! What a great idea the freezer meals are. What about getting in the Molly Maids to do the housework for a few weeks too! Great to be able to talk to you again Maggie. Sorry about the rambling!!

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!