After about 5 days of choking on water trying to wash down caplets of co-codamol and some other medications,I gave in and phoned my GP on Tuesday. She arranged for me to see her in the afternoon. She gave me a prescription for Oramorph, liquid digoxin, soluble dexamethasone, and lansoprazole that dissolves on the tongue. It's taken away from the dread of knowing that the tablets were going to give me a choking fit, it was like trying to clear elastic bands from my lungs Lol. So it's been a relief not to suffer from the choking although I'm not overly impressed with the Oramorph for the pain relief. I was taking co-codamol 30/500mg 2 in the morning and at night time, I tried 2.5 ml of Oramorph in the morning and had to take 5 ml a couple of hours later then 4 hours later as per the guidance. Hopefully things will improve over the next few days once I get used to the Oramorph and being back on 2×2 mg Dexamethasone kick in. I'm having difficulty swallowing food and hope the Dexamethasone might reduce inflammation of my throat and I can eat more and I get some energy back. I've certainly felt drowsy with the Oramorph and I hope that clears up as I certainly wouldn't drive if feeling like this. I have a follow up appointment next Tuesday and will get the results of a blood test the Dr took and she wants to see how I am doing. I'm going to ask if I would be considered for having a stent fitted to make eating easier as I have been losing weight. I need to get my energy level back up since I have persuaded my wife to let me saw a dead tree down with my chainsaw. It's the only thing on my bucket list. Sorry for the whinging, I needed to get it off my chest. Kind regards Frank.
Need a before and after picture of the tree, in due course, please!
Seriously though, hope you get on better with the liquid medication. I tried peptac liquid when omazoprale tablets wasn't working for me. I hated it! I hated the taste. I had to force myself to take it, occasionally, lol, so it was also destined for failure. I also hated the fact it was a liquid because it reminded me of giving the kids calpol.
What's on your bucket list once you've done the tree?
Claire xx
Not nice not being able to swallow definitely fluids only or soft food sounds like you are doing all the right things. Short term goals are good. I am going to keep going to see my first grandchild in June
I am also losing weight but I can eat small amounts and drink alcohol at the pub.
Best wishes
Ruth
Ruth
Hi Frank,
Could you ask your GP to try liquid/dissolvable paracetamol and take it with the oramorph? That would be like having part of the co-codamols with another opiate. The one might make the other more efficient - 'symbiotic' I think it's called. Worth trying I would think. I had this combo in hospital for a while for post-operative pain - which was pretty bad - and it seemed to work for that. Best wishes, Rainie x
Hi Rainie, thanks for your idea about the paracetamol, I do remember being on paracetamol and dihydrocodeine in hospital. I will ask my GP on Tuesday about the paracetamol. I've been taking 1×5ml spoonful of Oramorph about 4-5 hours apart, I had to take one at 6:00am this morning. So I might try 7.5 ml at bedtime tonight then back to 5 ml every 4-5 hours. I'm trying to avoid getting addicted to it. I did feel a wee bit better today. Thanks again, kind regards Frank.
Hi Ruth, I'm glad you are able to eat small amounts and get to the pub for a drink and socialize. Definitely keep going to see your first grandchild, it's good to have something to aim for. If I have to blend or liquidise some of my food then so be it. Kind regards Frank.
Hi Claire, I do intend to get a friend to take before and after pictures of the tree felling. I might have to wait until the weather is better and I am feeling better. I do feel that the liquid meds have helped me, I don't dread having to take them because so far no choking fits. I think after the tree felling I shall retire Lol. Kind regards Frank.
Thanks for your reply Ruth, I had a phone call from a Marie Curie nurse today and I told her about the situation and change in my meds. I told her I am seeing my GP on Tuesday, she said that she would email her to suggest that I got pain medication that lasts longer than 4-5 hours. I told her I was taking 5ml of Oramorph about 4 times a day. Yes I realized that there is a good chance of becoming addicted so have been trying to limit it although last night I took 7.5ml before bedtime and that lasted until about 10:00am. I'll let you know how I get on at the GP on Tuesday. Thanks again, kind regards Frank.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007