Did I say I had no side effects?

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I said I had no major side effects from dose 1 of Erubulin. Spoke too soon, havnet been sick or anything, but the fatigue is awful. I have been mainly horizontal since Sunday - just about walk dogs round a short circuit and then lie down again. Housework, what is that? Have managed to make myself a veg stew today, so maybe been a bit more vertical today. No doubt by Friday morning I will feel fighting fit, just in time for dose 2 on Friday afternoon. I know fatigue isnt the worst side effect i could have, and many have and are having much worse, but it does sap positivity.. Still I get next week off so am really hoping that full energy returns for a while.

Full sympathy to anyone going through worse, or the same.

  • Hi OBS I do hope your time off your treatment will allow things to settle down for you, just enjoy the break!

    Hi Stuart, yes my trial drug caused a lot of problems but at least they were not as life threatening as the cancer!

    Hi Ruth, It is hard when the treatment stops but a bit different if it is only postponed for a bit!

    Hi Chelle, My oh my, what a terrible state your hospital and OBS cancer unit seem to be in! Treating A&E patients in ambulances outside the hospital must surely be an emergency solution! I wonder then what happens if someone has a heart attack or road traffic accident, when the ambulances are already being used! I shudder to think about it.

    I know some of the hospitals in Scotland can struggle with staff shortages because of flu etc but things aren't as bad here as you have described. We are very lucky!

    Have a great weekend everyone!!

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!
  • Good for you to have a break.

    winter time is always busy for the hospitals and the ambulances pile up outside. A and E. We are still lucky to have an NHS 

    Hope you are feeling better soon and white cells back to normal.

    It is tough when they can’t get to calls quickly enough.

    i am also angry with the government and with people who won’t wear masks and go round singing about keeping a fart in your trousers ! Have you seen that ?

    Ruth 

  • Hi Ruth, I have thankfully missed this eddifying message, but with the number of bars now open all day in most city centres I am not surprised. In our part of the world hardly any visitors wore masks anywhere. They were all on holiday and thought the virus was too. One despairs.  Rainie x