Just a quick Hi

FormerMember
FormerMember
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Still here, prognosis given in December was 6-24 months. Just back from a week in Yorkshire.

Am on watch and wait with 3 month scans and follow up phone call with results. As there is no treatment for me - Sarcoma - in leg, it’s slowly spreading, now in lungs pancreas and abdomen. Advancing slowly though and am told I look amazing. That’s a first !!

Daughter over for 3 weeks from Europe with her little dog so that’s good and we are going to a Festival at end of month with 2 of my sons. Hoping to embarrass them as didn’t think I would make it this far.

I think my saying of the month is

Make hay while the sun shines,

Cx

  • Hi sorry to hear your news but everyone here has welcomed me over the last month or so. Glad you are feeling well and looking forward to time with your kids

    all the best

    gray

  • FormerMember
    FormerMember

    Hi Lilly,

    Sounds like you're smashing it, long may it continue.

    Much love,

    Stuart x 

  • Have great fun embarrassing your sons. I think we knocked all the embarrassment out of our kids when they were small, we can't do it anymore!

    Good luck with the watch and wait, I am on that too. 

    Sarah 

  • FormerMember
    FormerMember in reply to Salis

    Thanks. Have the 3 monthly mri soon so festival at right time.

    Good luck to you too xx

  • Sounds like you are doing great. I am similar in that mine s slowly spreading as well. I was told I gad 2 years left and I am still here 2 years later planning a holiday next month. Making the most of things while I am still here.

    lovely to spend time with your daughter plus dog xxx

    Ruth 

  • Sending virtual hugs at this time to you HeartHeart. Hope we all have some nice days ahead. 

    Yorkshire is such a wonderful place, so many beautiful villages and natural landscapes.

  • Sending virtual hugs at this time to you HeartHeart. Hope we all have some nice days ahead. 

    Yorkshire is such a wonderful place, so many beautiful villages and natural landscapes.

  • Hey Lilly,

    Hope you have a wonderful time at your festival and the sun shines for you. make lots of hay! RDx

  • FormerMember
    FormerMember in reply to ruthjp

    2 years living with diagnosis then? All we can do is keep planning ahead for the good stuff, I hope you have a brilliant holiday xx

  • Hi Lily, Have a great time with your family. Just remember Watch & Wait can last for years! 

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!