‘New phase’ in stage 4 gastric cancer

FormerMember
FormerMember
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Hello everyone, I am new to this forum I am just looking for some support.

I was diagnosed with stage 4 gastric cancer last June which had spread to my ovaries.  I was 58, a little overweight, but fairly fit and active.   Just before Christmas I completed 6 cycles of chemotherapy and was lucky that aside from a little tiredness, I coped with it well.   At Christmas my oncologist felt that my cancer was stable and we progressed to 3 weekly infusions of herceptin for maintenance purposes.  However over the last few weeks I have developed increasingly bad Ascites and was admitted to hospital last Thursday for investigation.

The oncologist has just been to see me and has confirmed what I already knew, that I have entered a new phase and need to talk to them about my care choices going forward, what are my priorities, do I want to try whatever treatments are available, what are my thoughts regarding resuscitation and would I prefer for my end of life care to be at home, in a hospice or in hospital.  I also need to complete a ‘Respect’ (?) document with the medical practitioners.  
Although  I was expecting all of this, I must admit that I am sitting in hospital by myself feeling a bit she’ll-shocked all the same.   I was not prepared to enter any sort of conversation regarding future care preferences until I have spoken to my husband and children.  We did initially discuss these matters when I was first diagnosed last year, but had put them to one side whilst we concentrated on being positive and getting through the chemotherapy; I know this sounds rather naive but it is how we coped.

I was just hoping that some of you will be able to enlighten me as to what this ‘Respect’ document contains before I have a zoom meeting with my husband and children tonight I don’t want to be blind-sided when I talk to the medical professionals again.

Thank you for any advice that you are able to give me; take care of yourselves - Justjayne

  • Give it an hour Enya58 and you will get good advice from people on here who will be familiar with your illness and who can suggest some ways forward.  Xx

  • FormerMember
    FormerMember

    Hi - Sorry to hear your news but keep fighting...

    I have just completed my Respect form with the help of a lovely McM's specialist and it really is just a bunch of notes confirming what YOU want to happen during the EOL process.

    You could google the content so that you are aware prior to your meeting but it's really simple actually but of course, it does bring into focus what will be happening in the future... needs be & all that - I found that actually discussing the whole thing gave me some comfort & control.

    Hope that helps but above all...

    Stay Strong

    SiT

  • Hi Jayne, 

    I have nothing particularly helpful to add but just wanted to welcome you to the group and to tell you to keep your chin up. 

    Best wishes 

    Stuart x

  • FormerMember
    FormerMember in reply to Norberry

    Thankyou x

  • FormerMember
    FormerMember in reply to FormerMember

    Thankyou, I will do a search online (not feeling quite so she’ll-shocked now); ihow you describe it, it sounds like a good idea and will help to feel a bit more in control - appreciate your help xx

  • FormerMember
    FormerMember in reply to Galilee

    Thank you Stuart xx

  • FormerMember
    FormerMember in reply to FormerMember

    So stick around Jayne - we have quite a laugh around here... You know, in the face of adversity and all that but mainly just at Norberry!!! Hahahaha!

    Also - you'll get to see Gallilee's 5000 acres & canal boat collection in more detail and we have doggies galore + "The Matron" (she who must be obeyed) along with our virtual bar owner, tvman and assorted other nutters - all great people with much experience in fighting this bastard disease that they will happily dispense at times of need.

  • SiT is not quite Michael Mcintyre although he likes to think he is. Just take any useful bits that he has come up with and ignore the rest.

    He is jealous of my knowledge. I have two O levels, he managed to get expelled from borstal so you can see why he has to laugh at me.

    He has just bought an electric bike, for him that means next stop Tour de France and a yellow Jersey. I see his next stop in A&E and various replacement bodily parts.

    I do hold a senior position here but I don't insist on my title. (Sir but SiT spells it cur, very funny, not.)

    Its all a big shock for you at the moment I am sure, we have all had that and got through it. So will you. Xxx

  • Hi  , Welcome to the forum, although nobody wants to be here. Your way of coping by not talking about EOL whilst in active chemotherapy is hardly unusual, and we do what we need to do. Elsewhere on this forum we have spoken about a book called "With the end in Mind" by Kathryn Mannix, a palliative care doctor. If you can face reading it now or soon, it really does help to face up to our fears around EOL. All th best for now, and am sure you will get plenty of support on here, when you need it.

  • Hi Jayne

    Like many people here I don't have anything useful to add, but welcome to our group. There are lots of lovely people here who cope with horrible uncertainty with good humour and kindness.

    I hope that you had a good discussion with your family. 

    Best wishes 

    Sarah