Incurable lung cancer

Hi

Many of us on here are incurable but still treatable - that is the cancer is eventually going to win, but for now, there are drugs etc to keep it under control and allow life, and often a good life to continue. Once there are no treatment options, then it becomes a terminal diagnosis. Many live for years, well past by their sell by date,  as incurable but treatable.

Hope that helps.

Hi  it partly depends who is asking for the prognosis & why. I needed it for holiday insurance, likely to survive beyond 6 months of our return date...

I was changed from Incurable but Treatable to terminal because of complications which meant that the cancer was likely to be the cause of my death in months, and certainly less than 12 months.

If it hadn’t been for the travel insurance I wouldn’t have asked, but it made the pathway to PIP very straight forward and I’m very grateful for that.

That was 15 months ago  xx

Oh , I don't like to read of your impending demise. I know it's coming but it's horrible to think about it. 

Take care and stay safe Tinalay

Tvman xx

Hi Misjudged, Yes, is the straightforward answer! When I got diagnosed, I was told Malignant Melanoma was an incurable cancer and therefore terminal and given 5-7 months to live. It had spread to Lymph Nodes in Chest, abdomen and bones. Then my Oncologist managed to get a major Lab to agree to supply an unlicensed, untested new drug, which I agreed to as I had no other options. She told me it might give me an extra 5-7 months of life, which sounded good. I told my family, they are developing new drugs and treatment all the time and by the time this one stopped working, there may be another I could try! I was then incurable but treatable. The drug worked for me and is now licensed and given on the NHS. Believe it or not it is still working for me! Not only that but when it does stop working, I will then have the option to try Immunotherapy which hadn't been invented when I started the drug. I am way passed my sell by date and even my Oncologist can't believe it! I never use the word terminal and now a,lot of the Oncologists do not use it either!

How are you doing on this rollercoaster journey. I've just read your Profile Page and it is familiar in many cases! Hang in there, they are inventing miracle cures and I hope there is one out there for you!

Thanks for all your replies it just sometimes you never seem to get a straight answer from anyone it's usually

We don't say that anymore and it does make my blood boil when I don't even feel ill ,I usually feel worse after my chemo session I think everyone does.and being stuck on furlough from work has made me feel even worse.

The reason I asked the question first of all should I could I claim for one of my pension if hospital doesn't give you any time line but insurance wants one.it seems a catch 22 situation.

Regards for now

Russell

I asked my oncologist for a time line so that I could extract my pensions and claim my life insurance. He wss very supportive and put it in a letter for me. 

Stuart x

Hey Russell

There is a specialist MacM team that you can contact thru this website who will guide you thru what is available to you prior to contacting your onc for certification re your pensions...

Click on "Ask An Expert" & good luck

SiT

Thanks all