Thanks for replies

FormerMember
FormerMember
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Hi Jim788 just a follow on from my chasing and waiting I was awaiting pre-arranged phone call on Monday from specialist nurse to discuss me starting on enzalutamide/xtandi tablets and bang on time nurse rang time being 11am discussion done thought I would mention my bone scan dilemma and was told she would look into for me and apologized 15-15 pm my mobile rang it was the medical physics team asking me if I could make the next day for my scan this I did so just wondering about what happened to my letter as told its in the post its been 5 days unfortunately not yet arrived me thinks this was a fib as has already said one has to fight your corner and be assertive thanks to the specialist nurse for sorting

PS I don't sleep very well apart from sleeping tablets anyone got any remedies 

  • Hi Jim, I am so pleased your Specialist Nurse managed to sort things out quickly for you. That is what she is meant to do but you have to know WHO to ask! 
    I haven't had a full night's sleep (ie longer than about 3 hours) for as long as I can remember. I did try sleeping tablets for two nights but hated the feeling in my head with them! I probably did sleep for about six hours but it wasn't a natural sleep, so felt like a zombie during the day. That was about 5 years ago and I haven't taken them since. I like to see our grandchildren and couldn't even have a conversation after these pills, so stopped them!

    I usually spend most of the night doing jigsaws and word games on Apps on my iPad, or read books on my Kindle. To be honest, most nights I would come to this site and read lots of posts and answer some but recently it has been very hard to do. The jigsaws and word games are free apps and you can choose to do a 12 piece or a 440 piece jigsaw, it depends on you! These things, I can do in bed with the light off, so I don't disturb my husband but at some point, he usually wakes up and brings me a cup of hot chocolate or tea!

    You could always start a Blog on the site, or read some! Sorry I have no other ideas for getting to sleep but I'm sure there will be something here on the site to help! Or others will give you their ideas!

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!
  • FormerMember
    FormerMember in reply to anndanv

    hi thanks for your reply the specialist nurse bit I got wrong she is a clinical nurse I got her only because I was starting on enzalutamide chemo pills don't seem to have a specialist nurse a bout a year ago I rang a nurse whos name I was given when first diagnosed was told she had moved on and someone would ring the next day call never came and silly me I didn't pursue it anyway I have now a Macmillan Chemotherapy clinical nurse specialist called Kate she is going to ring on the 24 November to find out how I am coping as there are lots of side affects and I am positive she will look after me my attention span as always been awful mind as I type the letters are very small suppose I could learn how to use site correctly to be honest haven't got my head round the new upgrade you have a lovely ending which I would like to pinch

    Yesterday is History, Tomorrow is a mystery, Today is a gift