Daloni update

FormerMember
FormerMember
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  • 56 subscribers
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Well hello my lovely people.

I’ve been trying to reply on the site, but as we all know it’s not working very well right now.

I’m so touched by all the messages you have been sending to me and I’m so sorry I haven’t replied individually. I re-read everything this morning at least twice and it’s been wonderful.

I think people have asked me for an update, so I’m going to do one.

I’m in Saint Christophers Hospice in London now. I was admitted for pain management and I have to say they have done a magnificent job. I’m not going to be going home from here. This is going to be where I end my life.

I’ve had a couple of interesting conversations with the nurses and the doctors. They can never give you a clear picture of your prognosis,  we all know that. But my sense is that I’m becoming sicker each week and that I can expect to have a few weeks left now. I am free from pain. I’m free from any distressing symptoms. I’m in a kind of bubble where my physical needs are being met and also my mental and spiritual needs. You guys are really helping with that.

All the right decisions have been made regarding the future of my daughters. There is nothing outstanding. All I need to do now is let go. I have been fighting for so long that I find it incredibly hard.

The one outstanding thing is my funeral. I am planning that at the moment I will be having a small family cremation. Then later when there is covid lock down his open my family will organise a massive party in a field in Devon. So there won’t be any live streaming, sorry, just not me. But I’ll try to find a way to let you know when it is so that you can think of me. Maybe it’s an anomaly. I’ve been so public about everything I’ve experienced and gone through and now when it comes to a public event, I want to be private. I don’t know. It’s just how I feel and that’s what matters now. Also I don’t think my family would like it, and they really matter.

I’m going to carry on posting. This is not goodbye. Well it kind of is an opportunity to say goodbye just in case. But hopefully not. My love to each and everyone of you,

Daloni XXX

  • Hi All,

    I got my podiatry appointment letter today so services are obviously available again in some areas.

    All the best,

    Gragon x

  • my toe nails were affected by chemo, I managed to get a private appointment and she came around my house and did an excellent job. It wasn’t overly expensive either. If you’re in need check if there are private Chiropodist /podiatrist Operating near you

  • FormerMember
    FormerMember in reply to FormerMember

    Dear Daloni
    I haven't been online for a while here so have just read your news. I know that I don't know you, but I just want to say thank you for your inspirational posts that I have read over the last couple of years. You have undoubtedly touched more people than you can possibly know and that is such an incredible legacy. I have no doubt that you have raised your daughters to be amazing women who will always carry your love.

    I hope you stay in your bubble for as long as you are happy to and when you're ready, I hope something amazing is waiting for you.

    Jo xxx

  • FormerMember
    FormerMember

    Dearest Daloni, 

             

    Thank you for being there. xxxx

    Tinalay

  • Hi 

    How are you? I was thinking about you today.

    Tvman xx

    Love life and family.
  • Hi there tinalay wow it's ages since I have seen your name on here it's really nice to see your name on here hope you are doing well don't know if you have had issues with the site a lot of us have and you know what I am like with technology at the best of times hope you can post it would be nice to have a catch up xxx

    Flippen
  • Good morning , I’m assuming you are still being looked after very well at the hospice and wondering if you have eaten all the sunflower seeds that were so kindly sent to you or if you have rationed yourself. Nuts and seeds are my weakness my body if it sees a bag wants to munch through the whole lot which for me isn’t good as I’m currently putting on unwanted weight. I can see you are still actively helping the new members of the forum find their way to the right group so I have to assume that the pain is still under control and you are feeling at peace with everything. I can imagine that you also have chatted to each and every member of staff you meet in the hospice and brightened up their days to. It’s so important to find a bit of joy in each day isn’t it. 

    I had my treatment on Sunday moved from 9am to 12 noon so we were able to book ahead a short early morning visit to a National Trust garden in the morning before my treatment yesterday. We have a preferred route that we follow which wasn’t possible with the one way signage around the garden but having gone there for 5 years during my treatments we actually saw some views we hadn’t seen before so change isn’t always bad, and of course with the changing seasons different plants are brought into focus, if I could remember their names or had taken photos I could give you a much more interesting chat ! 

    Sending a gentle hug and hoping you have 3 good things to think about today.

    Take care KT

  • FormerMember
    FormerMember

    Hi Daloni

    I do not know you but I have read some of your posts when I joined this community in July. You have been an inspiration to us all and I am so glad to hear you’re not in pain and that you are at peace now. Sending big hugs to you and your family. 

    Christine. Xxx

  • Be thinking of you Daloni...hope you're comfortable..hugs Pet

  • Daloni, I came on here looking for you as you'd been on my mind and after asking I'd heard you'd gone into the hospice from Ali. You touched my life for a moment and many of your words will stay with me. You have a way of making people feel inspired and special, that's an awesome quality in any human being. I'm glad we met if only over the phone when you gave me advise on how to deal with taboo subjects relating to cancer side effects when asked to go on TV/Radio. You were invaluable to me and I've not and never will forget you. I am thinking of you lots and lots. Massive hugs darling xx Val Basnett

    Val