Daloni update

Hi IamLyn

Thanks for your kind words. I’m not sure I understand why Covid cares what you wear at your wedding but I hope October 8 is a sunny autumn day and that whatever you’re wearing you’ll look gorgeous. We must all let the sunshine and happiness into our lives. 

Xxx Daloni 

Hello Daloni, I don’t know you but have been reading your posts. You are an inspiration and I wish you all the best. I am glad you are not in pain. Hope to hear from you soon. Sending hugs

Lynne xx

My Dear ,

I check the Sunflowers daily.  Mother Nature is taking her sweet time, the sunflower seeds are maturing, I now have some starting the black stripe on the outside , but the edible inside seed is still not mature. What do you think of my sending some seeds on Monday and let them mature on the way across the pond? 

How are you feeling ? I think of you often.

I had some good news this week, I am off the Benda/Rituxan for now so my vertebrae can have a chance to rebuild- fingers crossed.

Sweet Dreams and Hugs 

Millie

Hi Millie

I just replied to you on the gardening thread! It’s good news your back can now have time to recover. I do hope that will ease your pain as well as reduce the risk of fracture. 

I am still in the hospice. Well I think I’ve been clear I won’t be home. I try to stay in the day and remember how lucky I am. The pain control is holding and the nursing care here is second to none.

My big girl managed a visit today. It was so lovely to see her. She has dyed her hair bright pink and looked very jolly. 

I have a windowsill full of sunflowers and very jolly they are. I think sending me some of your seeds is a grand idea - as long as it’s ok with customs and excise. 

I think of you often too 

lots of love 

Daloni    Xxx

My Dearest ,

So good that your big girl came by that was a big step for her I think. And colorful hair! Always wanted to do that but never had the courage. 

So on Sunday the girls and I will do a harvest and clean the seeds (organic -of course). And then they are food. 

i will document the harvest with photos. I hope the site returns our photos to the garden post! i am so glad you do not have pain. and That you are in good hands. Tomorrow Tori and I go to look at rescue dogs for a skipi companion. 

Take care Daloni and Sweet Dreams.

Millie

I have no idea what to say but I didn't want to read and run. I've read (and felt reassured by) so many of your posts that I feel like I almost know you so I hope you will forgive me for barging in here to say "thank you". May your peace and wellbeing continue to be all that you want it to be.

Hi daloni so pleased you are being well looked after and the pain control is working well for you and the nursing staff are looking after you your daughter with pink hair sounds very bold guess what I did when clap for carers was on I of course went the whole extreme and went for rainbow colours my best friend said that she knew rainbow drawings in the Windows wouldn't be enough I would have to come up with something else but that's just me sunflowers I your Windows sounds nice to look at and hopefully cheer you up take care a massive hug and loads of love from me xxxx

Thank you Millie . xxx

Daloni,

My apologies for having abandoned you these past months. I was overwhelmed by cancer and life, and didn’t keep up with either very well. 

Your kids are very fortunate to have such a wonderful mom.  I’m so glad that you know that they’re taken care of.  

And it’s so good that you have such good care.  You sound at peace. 

Thank you for having welcomed me to this community. Thank you for sharing your journey with and for your words of wisdom, and your warmth and kindness. 

I’m holding you and yours in my heart. Yours is a  job well done, Daloni. 

xxoo

Hi and everyone,

Sorry I haven't been about much but I was away in Whitby for a week and the wifi was terrible.  Usually I would go and sit in a cafe and access the internet there but the weather was unfortunately terrible as well and the cafes and bars were packed to an extent that I was not comfortable with so I didn't want to go and sit in them.  We still had a good time and it was good for my son to spend some time with his cousin who is the same age.  He has spent too long not being able to chat with his peers face to face due to covid and it was good to hear the pair of then chuckling together and having quiet discussions in the corner about things that we grown ups would no doubt not appreciate.

We went out to the Magpie cafe for dinner one night and had a lovely meal.  Much as I enjoy fish and chips they will cook whatever is available locally and in whichever way you prefer.  I tried grilled turbot with samphire and new potatoes in garlic butter, lovely.  I didn't totally forgo the fish and chips as we had takeaway one night as well.

I'm afraid that the weather was so bad that I still owe you that walk on the beach that I promised you daloni.  We had gales, torrential rain, unseasonably low temperatures and when that eased off we had fog.  There were two breaks in the weather of about half a day each when we were able to walk about and it was lovely.

Unfortunately one of those days was the day I had to go to the hospital for my CT scan results.  A bit of a waste of time I'm afraid.  They had the scan and the report but as the scan was undertaken in Scarborough they did not have the last scan (taken in Hull) to compare it to but had to compare it to the previous scan from 6 months ago in Scarborough.  At the last scan in Hull they didn't have the previous scan from Scarborough).  It appears to be stable rather than reduced, as it has been at all my previous 6 month scans, so at the moment I remain on the medication.  It is a bit unclear what is happening and I need to have a conversation with the main trials nurse to see if we can have a proper comparison done and what the implications are for my treatment.

Like I said this is the first time the tumours have not shrunk enough to have a break after six months.  However, my last break was the only one where the tumours did not grow at my next scan to the extent that I had to go back on my meds so I had a six month break rather than the three month breaks I have previously enjoyed.  I am happy with stable but would be more reassured if the scans were more readily available.  The next scan is now the critical one (isn't it always) as that will show if the medication is just taking longer to reduce the tumours, is continuing to hold them or if it has stopped being effective.

I also need to book a couple of appointments at my GP surgery.  My annual diabetic check up and a GP appointment.  The diabetic one involves blood tests and sensitivity tests which have to be done face to face but I'm not sure if I will be seeing my GP or talking on the phone.  I also see the podiatrist there so have to call them as well for an appointment.

When we got back from Whitby I was eager to get back into the garden and see what had been going on there.  I picked some more of my thorn less blackberries, I had a couple of courgettes from my second plant.  The first one seems to have stopped growing although there are some small courgettes set.  I might cut them and see if I can stimulate some more growth.  The cut and come again lettuce needs cutting.  My French beans have a few pods worth picking but I think I have had the best of them now.  I have turned out two bags of potatoes so far, 4 1/2 lb from the first bag and 5 1/2 from the second.  I have sweetcorn swelling on the plants and I am increasingly convinced that my mystery veg are pumpkins.  The biggest one has grown significantly but is now getting paler and looks to be turning a slight shade of orange.  It would win no prizes for it's size but as it is a free bonus I am happy with it anyway.  I have had to bribe my son with the promise of a larger pumpkin which he can carve in order that I get to eat the homegrown one.

/Millie, I think I am at the northern range for edible sunflowers as I have only ever seen a couple of fields grown around here so I think the local farmers have experimented but not been very successful.  My sunflower heads tend to be on the smaller size and they often start to mould before they ripen with our weather.  I sometimes buy bags of them produced in Spain, and salted and roasted, to nibble on when I am sitting enjoying the garden on a summer evening.

I'm pleased to hear that your big girl managed a visit to see you Daloni.  I hope that her pink hair means that she is feeling a bit more upbeat despite the situation.  As someone who started to lose their hair at the age of 16 I never got the chance to experiment much.  I'm not sure I would have ever wanted to do so but there is a part of my that regretted never having the choice.

I know it is a long message but hope that you can break it down a bit between sleeps.

Wishing everyone all the best,

Gragon xx