Daloni update

FormerMember
FormerMember
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Well hello my lovely people.

I’ve been trying to reply on the site, but as we all know it’s not working very well right now.

I’m so touched by all the messages you have been sending to me and I’m so sorry I haven’t replied individually. I re-read everything this morning at least twice and it’s been wonderful.

I think people have asked me for an update, so I’m going to do one.

I’m in Saint Christophers Hospice in London now. I was admitted for pain management and I have to say they have done a magnificent job. I’m not going to be going home from here. This is going to be where I end my life.

I’ve had a couple of interesting conversations with the nurses and the doctors. They can never give you a clear picture of your prognosis,  we all know that. But my sense is that I’m becoming sicker each week and that I can expect to have a few weeks left now. I am free from pain. I’m free from any distressing symptoms. I’m in a kind of bubble where my physical needs are being met and also my mental and spiritual needs. You guys are really helping with that.

All the right decisions have been made regarding the future of my daughters. There is nothing outstanding. All I need to do now is let go. I have been fighting for so long that I find it incredibly hard.

The one outstanding thing is my funeral. I am planning that at the moment I will be having a small family cremation. Then later when there is covid lock down his open my family will organise a massive party in a field in Devon. So there won’t be any live streaming, sorry, just not me. But I’ll try to find a way to let you know when it is so that you can think of me. Maybe it’s an anomaly. I’ve been so public about everything I’ve experienced and gone through and now when it comes to a public event, I want to be private. I don’t know. It’s just how I feel and that’s what matters now. Also I don’t think my family would like it, and they really matter.

I’m going to carry on posting. This is not goodbye. Well it kind of is an opportunity to say goodbye just in case. But hopefully not. My love to each and everyone of you,

Daloni XXX

  • FormerMember
    FormerMember

    Hi gang 

    I have had a lovely time reading and re reading all your replies. I am very moved. I’m sorry I don’t have enough energy now to reply to each of you. But know that I have read everything and am full of wonder, light and love. 

    I had a visit yesterday that was a surprise. I was dozing when suddenly 4 nurses came in to move my bed. They took it to the window, then pointed out a group of six friends on the pavement three floors below! All we could do was wave, but wasn’t that wonderful? Just to see their faces one more time.  

    Anyway. I’m still here. I still wake each morning and spend some time adjusting to my new reality. I never expected this end, to be paralysed from the waist down waiting for the cancer to take over. I’m in the best and only place to manage my pain and my care needs but that doesn’t make it easy. 

    Its you guys who help keep my spirits up. 

    Lots of love to you all 

    xxx

  • Dearest Daloni

    • i just couldnt miss the opportunity to let you know how much youve meant to me and the womb group over the years..always a safe haven to turn to in our darkest days a shining light that will always burn. there can never be another daloni and its been an honour to know you. kate xx
  • FormerMember
    FormerMember in reply to FormerMember

    Hello xxx

    I have been staying with my sister in Devon for a few days.  For two mornings we were up early whilst there was low tide at Exmouth to walk the dogs my one plus my sisters 6 month old puppy.  It was just gorgeous.  I thought of you Daloni I thought how lucky I was and how you too should still be able to do this.  But I know you’ve come to terms with having to stay goodbye.  Your too short life has touched so many people far more than most 100 year olds.  I am so glad you are pain free and feel in a bubble  I’m sending you a shield as well in case that helps too! Thank you for being you xx

  • FormerMember
    FormerMember in reply to FormerMember

    Hello daloni, what an unexpected and massive treat for all of you.

    Your people there have got a big surfeit of "can do" , no wonder you are settled in their care.

    Your friends arms must feel like they are falling off today and yours likewise. It must have been like the NHS clap, I bet plenty of passers by were wondering who they were waving at. Might have had you down as a Spice Girl?

  • Dear

    I'm just popping in from the Womb cancer group to send my love to you.  I live very close to St.Christopher's and I know what a wonderful place it is.  I've long been a supporter and often attended their concerts and events in non-Covid times.  I know they will be keeping you pain free and I hope you can be taken out into the garden again now the cooler weather is here.  You have meant so much to so many people on these forums and you are a true example of a life well lived.

    with love.

    xx

  • Hi Daloni

    We have not conversed very often. However that is not to say I have not followed your recent escapades.

    I just want to say that I am thinking of you, as are so many others you have been of great support to. I am glad you are not in any pain and hope you take great comfort knowing just how many people care. You reap what you sow. As is clearly shown with all the messages of support.

    COVID decided not to grant me my PJ weddind but I will be having a small gathering of 8 in October. Some things are just not meant to be.

    Take care lovley lady and let people take care of you.

    Xxxxxxxx

  • FormerMember
    FormerMember

    Dear Daloni 

    I am glad your pain relief is sorted.You are such a lovely person and gave helped to  so many people.I hope to hear from you again thanks for all your help. Take care xx

  • FormerMember
    FormerMember

    Daloni

    A great adventure awaits you. I hope your many friends who have gone before greet you and that you will be there for us when it's our turn xx

  • FormerMember
    FormerMember in reply to FormerMember

    Dearest Daloni, I just wanted to pop & say hi to you. We have met a couple of times - little barge on the Thames & Mac CC meet up - but you'll remember I'm sure. Always such a happy upbeat person. They

    sound such a lovely team of nurses where you are - what a great thing to do, arranging friends outside your window!!! That is above & beyond huh??

    If I could I'd raise a glass to you & all you have dealt with personally & sickness- wise - over the years. However, hospital appears to be an alcohol free zone !! Do you know years ago my Mother had a friend being cared for by Macmillan & they used to bring a bottle of champagne in with them each day!!! Now that's what I call pain relief.

    I hope the drugs they are giving you give you lovely dreams & keep you completely pain-free. That you especially deserve.

    Thinking of you & sending much love & gentle virtual ((((hugs)))).

    Diz xxxxxxx

  • FormerMember
    FormerMember

    My Dear 

    I am so glad you are in a pain free bubble, that is a blessing.  Wish I were there to bring you the flowers you see below, but I am limited to  the ones in the attached photo,...     r

     I had promised to send you photos of my sunflowers . so here they are 10 feet tall and caught a bee getting pollen in one of the photos

    Hope this finds you resting and enjoying all the mail from your friends here. You are an inspiration and a grounding compass for everyone. I think of you often.

    Big Hugs,

    Millie