Bad meltdown please help

Hi Janet,

Sorry, I don’t have any experience of what you are going through but I was worried about you when I saw your post. Just wanted to say that thoughts are only temporary. Things can seem really bad in a moment but those thoughts can’t and won’t last forever.

If you’re struggling to get attention, I would be really frank with your medical teams about how the situation is affecting you. Hopefully that will help you get somewhere.

Please continue to reach out for support, wherever you can find it.

All the best

Greg

Thank you Greg for your support.I just dont know where to get help I am so dissapointed with everything.I feel also guilty that I am whingeing too much some people are worse than me.But I cant help it already on antidepressants

Hi Janet,

No need to feel guilty at all, you’re not whinging, in my experience the mental sides of things are so so hard to deal with. In the short term, I’d advise you to be really strong with the medical teams to explain just how bad all of this is making you feel. Hopefully that will get you appropriately escalated. In the long run, things like counseling really helped me. Or doing something to throw yourself into - I wrote a book - it really helped.

Here’s hoping you can find something to get you moving forward positively. And please remember all those bad thoughts are only temporary - they can’t and won’t last forever.

Greg

Hi Janet 

I am really sorry to read your post and that you feel so let down. Believe me It's nothing personal, alot of us cancer patients (and people with other medical conditions) feel like we are being pushed aside because of COVID.

Have you let your consultant or nurse specialist know how you are feeling and that you are not happy with a telephone appointment? The reason I ask is because I was in a similar position to you and let the frustration build up for months. Eventually I had a complete meltdown, refused my blood tests and said I didnt want anymore treatment. It turns out my consultant had no idea that I had been calling regularly to ask for a face to face appointment and once they realised how upset I was I got an appointment, socially distanced and with full PPE so no one was at risk. I cant help feeling that if I had said something sooner I could have saved myself alot of stress and upset.

The whole COVID sistuation is getting ridiculous now and it doesn't look like it will be going away anytime soon. I feel like we need to start putting our foot down to make sure we get the treatment we are entitled to. If people can go to the pub and get their haircut then surely we can get a hospital appointment. 

Take care

Georgie