Hi folks just been catching up with some posts as I lie in bed a bit out of it.
Last time I posted I was awaiting a scan which I had on Thursday. I had been feeling quite ill and had not keep anything down for 6 days when the district Nurse and Pallative Care Nurse arrived yesterday. I was pronounced not well and many calls took place as I was not wanting to return to the local A&E department.
A lovely consultant from the hospice rang and talked to us surprisingly she had the scan results from the previous day. After checking if we preferred to know what was happening she talked to me and my husband on speaker phone. Not surprisingly it was not good news and although she could not say when I have probably not got long left. The immediate issues were getting IV fluids and anti sickness meds and they can not be done at home. She tried to get a hospice bed but they were full. Later she rang back to say that our next nearest hospital was happy to see me straight away they had a separate room I could be seen in and they were happy to take what she said was needed whilst running some other tests. All being well I could get home that evening. After my experiences over the years I was still quite reluctant but it all went as she said with the A&E doctor working closely with her it was great to see. Not surprisingly after 6 days of no food my blood sugar had plummeted so I got 2 bags ordinary fluid, 2 bags glucose, 1 bag salts and 2 anti sickness via IV and got home at 7 pm. It's been a rough night as it is difficult to get in a comfortable position but it is home.
Not sure what is next hopefully improvement and some pain control but if not I have not had a bad run and I have tried to make the most of my time. I still have things I want to see my family achieve but that will always be the case. My husband has been marvelous and backed me all the way. The next conversations we have I will need to listen carefully to what is best for him.
Take care everyone
Hi
I'm so glad to see that you are receiving the attention you need and deserve. After receiving your fluids, glucose etc I hope you're feeling quite a lot better. It's great that you were able to get a separate room at hospital.
I am dismayed of course that my long term friend isn't in good condition at all but I hope you can continue to receive the best attention.
Your husband is such a rock for you and his continued support and backing must be of such a relief for you. Long may it continue and long may your posts be full of news that your team are looking after you (with your observations too 
)
Take care Maz and stay safe
Tvman xx
