Tiny niggles all add up

Dear daloni

i read your post and my heart went out to you . The mouth ulcer sounded painful , I have had them but not like that . I am sorry everything has built up and you felt overwhelmed, I hope with your big girl pants you are feeling a little better. All I can say is I find you one of the kindest considerate I have ever met . Despite everything you always have a kind supportive word for others  You are a remarkable person. I hope your GP and the CNS nurse can help as well. I send my love xx

Hi

First of all, happy anniversary! That sounds like a lovely way to celebrate twenty years of marriage. I am so happy for you. 

I am sorry to hear the chemo is dragging you down. I am familiar with the feeling having been through it three times now. I’m about to embark on a fourth lot. This is palliative chemo so the idea is that it will help me feel better. I’m clinging onto that notion, more in hope than expectation. I think one of my oncologists never spoke a truer word than when she said “there’s no such thing as a free ride with cancer treatment”.  

I truly hope that your gut feeling is wrong this time. Please do let me know how it goes.

Lots of love xxx

Thank you everyone for your kind words. As usual I feel buoyed up by knowing we are all thinking of each other and that we all know what it’s like and can genuinely sympathise. 

You will be pleased to hear I am propped up in bed, the windows open with a cool breeze playing through the room. I’ve had lunch and a nap and think I might have a cup of tea now. I’ll just holler down to my daughter...

xx 

Thank you Daloni for taking the time to send your good wishes when you are feeling bad yourself. I really appreciate it.  What a wonderful person you are.

I will certainly let you know how I get on with my results.  

Wishing you some sleep tonight x

Hi Sheena  Your anniversary sounds very romantic, which is what an anniversary should be!  I think you are spot on about the pain. Everyone says there is no need, in this day and age, for anyone to suffer pain! All I can say to that is "What a joke"! Pain stops me walking, sleeping, standing for too long etc etc. Last Wednesday night I was in so much pain and so tired, I found the tears started running down my cheeks! I had tried everything I had been advised to try but nothing worked. I went onto our repeat prescription, online, to order some more Lidocane Plasters, I couldn't believe they had disappeared from the list and other meds I had never had, had been added! In the morning, I phoned the surgery, where we have a pharmacist you can speak to. W within half an hour He called me back. I explained the problem. He asked if I had been to the Pain Clinic, I said yes but they said they couldn't suggest anything else that might work for nerve pain! His answer was "yes unfortunately that seems to be the case, they can't help with nerve pain"!  Turns out, he was phoning from home and said he only had access to some of my records, so he would be in the surgery Friday and he would give me a call back on Monday, if he could come up with any suggestions! In the meantime he would order the Plasters for me and fax the script to the local pharmacy, so at least that was something! 

Like a lot of people here, I have been living with pain for a long time now and you'd think I'd be used to it but sometimes it just Gets to You! I can hardly believe the amount of pain drugs I have tried and can't tolerate for one reason or another! I do hope everyone with these niggles, especially Daloni, finds relief. As Gragon said, ulcers develope when your system is below par, which makes them all that much harder to heal! Well that's my rant finished for the year! It doesn't happen often but your post just hit a "nerve"!!!

I am so sorry to hear about your pain it is so hard to be in so much pain and you can’t think of anything else. I hope they can help you with the pain.

i found the only thing helped my nerve pain wasn the operation on my back. You have had the ipoperwtions you can have 

I now have headaches which are getting progressively worse. The GO ordered the wrong tablets as I need soluble ones The others make me vomit. I just hope they arrive today As I have one tablet left. It is hard when you you have to manage repeated phone calls when they get the prescription wrong

i hope the lidocaine patches help.

Love xxx

poppies at the edge of the field

Hi Ruth

They're lovely poppies, quite small and so brightly coloured

Tvman xx

Dear ,

I would call it a lot more than a few niggles!  My goodness, wish I could come by and sit with you and make you a cup of tea and turn on a cooling fan.  Cold showers do well to cool the soul during the hot days. And the mouth sores I had them when I was in my first chemo but never had one the size of a penny. What does your GP say? There has to be something she can give you to help. To the cracked hands, do you have Gold Bond ultimate healing cream in the UK? that helps for my very dry skin.

Im about to go through another cycle of BR in a few weeks, so Ill be on the same boat with you soon.

I am so happy to hear about the fence that lets you go outside without Noodle escaping. Very nice.  One thing Ive been doing in the heat is to sprinkle the garden and walk through the garden and cool down. 

Hoping this post finds you in improving health. Thinking of you.

Hugs,

Millie

Hi Daloni,

I am new to the group but I have read all the responses to your post and can tell that you are an amazingly kind and strong person. It seems so unfair that you have had so much suffering and it appears to be getting worse. 

My thoughts are with you and I really hope you are feeling better soon. Staying in bed and being kind to yourself sounds like a really good formula.

My dad once said to me "it is only pain, it won't kill you" - he was talking about back pain after I had my 5th spinal surgery (before my cancer). Apparently this was said to him by his specialist .............................. all I can say is that whilst it sounds silly, I repeat it to myself often when I feel like my pain is the end of the world. I can't explain why, but it sometimes helps.

Best wishes to you all xx