Scanology

No, your not the only one!!! I do that since nearly 5 years now. Every time scan comes up, i get all the pains and aches, mostly in my head ( had a brain tumor/mets) .. so far so good.

Family and or friends cannot feel with us, it's hard if it is not yourself. It's in our head. And, its normal i think. See we are incurable, and we all know, the day will come...could be tomorrow could be in 20 years, nobody knows.

They all say, try to think of something else, or do stuff...it does not work for me. So , we just have to life with it.

Hope you get your answers soon, and please good ones.

Pet

Hi Julie

 I know what you mean. I get a scan every three months. I have bone and liver cancer. My last two scans where not good and when  I heard that it had spread to my liver, I went shopping. Why, goodness knows. I didnt cry just thought, well what can I do, I must just get on with it. Then a couple of weeks ago I had another scan and a couple of days later my Consultant rang me as I was parking my car. She told me the had very good news. When we finished speaking I punched the air and starting crying.  I think all the pent up emotion suddenly came out. Goodness knows what anyone walking past me thought. I find fir myself, writing a poem of how I feel helps,  but I have always written. Its had when realivtes says it giid need on your scan, only we going through it can understand how you feel. None of us know how long we have but I made the decision that I wasnt going to live what time I have in a permanent depression. I think I surprised myself and a lot of other people. All I can say is get up each day, do something nice for yourself and just love each day as it comes and like all of us be grateful for today and let tomorrow take care of itself.

Ellie x

Thankyou Pet1968 and Ellieellie, for your kind words of support....picking myself up and giving myself a good talking to, so going out for some me time with the family today.....onwards and upwards xxx

I like the word scanxiety more than scanology. Lol.

Just a random bit of info to hopefully raise a smile. 

Lass

Xx

I know exactly how that feels. It's 2 years since my incurable diagnosis, I had gamma knife surgery to inoperable brain and skull tumours. When the 1st scan showed a good response the celebrations were lost on me as by that time further scans showed widespread metastasis throughout my ribs, spine, pelvis and leg. It didn't feel like a relief, more like a stay of execution.

Since then I've had both good and bad results, but the bad results always came with a plan, so although I'm now on palliative treatment with a terminal diagnosis like many other members I'm doing better than expected and have found a way to live with cancer. 

It takes time and you can't skip the stages of grief, you have to be your own best friend.

xx

Hi

It is a horrible thing to face not just the scan but also the related anxiety. The advice for coping is always the same and it always feels inadequate - until it works.

I have been living with incurable cancer for nearly four years and in continuous treatment since November 2016 and I’ve had a lot of scans. I used to go through a lot of anxiety each time but these days I don’t focus on them. The cancer is not changed by them. The way I feel is not changed by them. Why let a CT scan ruin what would otherwise be a nice day? 

I have got here by working through the grief that comes with an incurable cancer diagnosis. I’ve found that meditation helps my overall anxiety and notice quite quickly how it can ratchet up if I don’t practice it for a few days. 

I think has hit the nail on the head. There are no short cuts and you do have to be your own best friend. 

Xxx